Clive Coleman
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Let me ask you an unpalatable but pertinent question. Would you rather be sectioned under the Mental Health Act in a secure hospital, or detained at a rural care home? And while I’m asking, which option would you want for your elderly parents? Unless I'm mistaken, you’d probably go for the care home. It just sounds nicer, softer. It conjures up images of a gentle decline into senility and death, whereas sectioning raises the spectre of straitjackets, ECT and Jack Nicholson in One Flew Over the Cuckoo’s Nest.
Now I don’t want to scaremonger, but you may be surprised to learn that if you or your parents suffer dementia and lose what the law calls “mental capacity”, your rights and protections when detained in the nursing home are far weaker than if you were sectioned.
Once sectioned under the Mental Health Act, a raft of important rights kick in automatically. You are entitled to a hearing in front of the hospital managers, which could result in you being discharged. You have the right to have a second set of doctors review your treatment. And you can go to the highly experienced mental health review tribunal, which could order your release. If you are detained in a care home because you lack “capacity”, you get none of these.
The contrasting treatment of those who are sectioned because they are suffering from a defined mental illness and those who are detained because they lack capacity was brought to light in an extraordinary legal case. In 1994 a devoted middle-aged couple answered an advertisement to become the full-time carers of a 44-year-old man who could not speak or care for himself. He can only be referred to as H. Extraordinarily, the couple were not told at the time that H was autistic or that he had severe behavioural problems.
H had lived in institutions for most of his adult life, but soon settled into a loving family life with his carers. Then one fateful day in 1997, on a visit to a day centre, a combination of a new driver, a different route and a fellow passenger becoming unruly caused H to become agitated. He was taken to Bournewood Hospital in Surrey. The hospital judged that he lacked capacity to make a decision on his detention and treatment, so kept him there.
For three months his carers were not allowed to see him. When they did, they were horrified. They told me that they found H in a room stained with his own blood. He had been banging his head against doors and walls in despair. He was a thin, crumpled, distressed figure. His carers left with blood literally on their hands and began a legal battle to have H returned to them. Some seven years later the European Court of Justice ruled that H had been detained unlawfully and the Government vowed to tackle the failure of the law to protect vulnerable people who lack capacity and are detained. That failure became known as the Bournewood Gap. The way the Government tried to close it was through the controversial Mental Capacity Act (MCA). It was passed in 2005, though parts of it are yet to come into force.
Many mental health lawyers and organisations believe that the MCA provides a dramatically watered-down set of rights and protections to a vulnerable, compliant and largely invisible group. People who lack capacity include those with learning difficulties, autism, head injuries and of course dementia, a fate that could befall any one of us. There are thousands of such people being detained in care homes up and down the country.
Under the MCA such people are assessed by their local authority, which then makes a decision on capacity and detention. The detainee has the right to challenge that decision in the Court of Protection. But how in practice can they do that? Most of the people detained don’t have carers to fight their case, and the legal aid that is always given to those sectioned and appealing to a mental health review tribunal isn’t automatically available to those detained under the MCA.
And campaigners point out another difference between the rights and protections under the two Acts. Anyone sectioned under the Mental Health Act is entitled to free care. But if you are detained under the MCA, your care will be means-tested. In other words, you could be detained because you lack the capacity to oppose your detention and treatment, and then have to pay for it. That could mean the forced sale of your house. As one lawyer put it recently: “Jeffrey Archer didn’t have to pay for his detention when he was banged up. But these elderly, vulnerable people with dementia will be paying for their own detention.”
Campaigners say that since the Bournewood case, the Government has missed a golden opportunity to provide those who lack capacity with the same powerful rights and protections that are given to the mentally ill. Can it really be the case that in 2007 a vulnerable person is better off sectioned in a secure hospital than detained at that rural care home?
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Would it be better to die in a gutter having thrown all you posses to the four winds?
Probably.
Charlotte Peters Rock, Knutsford, England
The government never misses out on a golden opportunity. We have an unconsitutional government that seized power in a bloody civil war from a monarch who believed he had a personal appointment from god. The government always seizes opportunities but doesn't hand out golden opportunities to anyone. It assumes responsibility for taking and spending our money, but it is totally uninterested in anyone who cannot contribute unless they have a vote that can be purchased by some form of social bribery.
Mr Brown - if you really want to change this situation and many like it, consitutionalise your government and live up to your promises.
KR, Stockport,
The reality is that there are going to be too many demented elderly people in the future for the state to guarantee a reasonable standard of care for every one, certainly to many to pay out jackpot awards to those whose children can make a case that their human rights have been infringed.
With mentally ill younger people we don't have this problem. The costs of a fairly elaborate rights and appeals system are not too high in relation to total government spending, and are less than the costs of putting the same people through the criminal justice system.
Malcolm McLean, Bradford, UK
This is a surprisingly ill-informed article that misses all the relevant points about the Bournewood case, the Government's response to the European Court judgment in that case (whether right or wrong) that is not yet in the MCA but will be an amendment to it (fully on record) through the Mental Health Bill, the limited prospect of detention in real terms in a care home, etc etc. If you want a decent article, which critically appraises and challenges the new system of protections rather than misses its existence altogether, do let me know.
Stuart Marchant, London,
My widowed mother who has dementia, was sent to a care home by an on-call GP after a fall. I have been trying without success since February to get her back home, and her care package reinstated. Nobody saw fit to infom me that the care package is lapsed automatically when someone is put into temporary respite care. Now I am repeatedly told that she "lacks capacity", has "no concept of home" and therefore she needs to stay in the care home. Because she has assets - a house for which my father saved for years before he could afford it, she has to pay for her own care.People who have been detained on Section 3 of the MHA and later need residential care have this funded because they are subject to Section117. Isn't this discrimination? Why is functional mental illness funded, but not organic mental illness?
Anne Dunn, Blandford, UK
And this is what the anti-smoking campaigners want us to die of, instead of swift, merciful cancer.
Joseph Bruno, London,
I would say neither. To me there is nothing like being a part of day to day society. Doctors should stop acting like demi gods. Maybe all this publicity they are receiving makes them so paranoid.
An H who is still alive!
Hasan Abdulla, Reading, United Kingdom
Definitely needs a review by the appropriate authorities..the whole business of mentally disabled people should be looked at, maybe a new form of legal aid made available to tackle cases. Never mind those who have never worked, give more to those who have and are now in decline.
Michael MacKenzie, Bolton, Lancs