Nigel Hawkes, Health Editor
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Patients who suffer strokes receive worse treatment in Britain than anywhere else in Western Europe.
More die and more are left disabled, a leading expert says in this week’s British Medical Journal, even though Britain spends as much as, if not more than, other countries on stroke care.
The gap is wide, according to Hugh Markus, of St George’s University of London medical school. One study showed that 15 to 30 per cent more stroke patients were left dead or disabled in Britain than in other countries.
Professor Markus identifies several possible reasons for the failure. European countries with better results tend to focus more on the care of patients immediately after a stroke, while in Britain the vast majority of money is spent on nursing and hospital overheads, and little on investigations or treatments.
Stroke care is a “Cinderella subject” in Britain, falling between neurology and general and geriatric medicine, he says, whereas elsewhere it is an integral part of neurology. This lack of interest may have led to underinvestment and, therefore, poor outcomes.
New treatments that can help patients to recover from a stroke make the failings even more significant. In strokes caused by clots blocking the blood supply to the brain (ischaemic strokes) the use of clot-busting drugs is effective, but patients must first be scanned to determine what sort of stroke they have suffered.
All hospitals have scanners, but struggle to scan stroke patients within 24 hours. For a patient to be treated with clot-busting drugs, the scan must be performed within three hours.
In many countries in Europe, and in North America and Australia, 20 to 30 per cent of patients get these drugs.
In Britain the figure is less than 1 per cent. Britain also treats fewer patients in dedicated stroke units than other countries, though setting up such units costs nothing and there is abundant evidence that they improve outcomes.
The audit by the Royal College of Physicians found that fewer than two thirds of stroke patients were treated in stroke units, and only a little more than half spent more than half of their stay in such a unit. The benefits include early rehabilitation, access to physiotherapy and staff experienced in stroke care.
Jim Whyte, who had a stroke ten years ago at the age of 55, spent 27 weeks in hospital - only the last five in a specialist unit. Mr Whyte, from Enfield, North London, was treated at Chase Farm Hospital. “Once I got into the specialist unit I had physiotherapy twice a day, speech therapy and training on how to manage for myself.”
The best help he gets these days, he says, comes from a local stroke club, whose members help one another with advice. He said: “That’s something the NHS didn’t think of. When I left hospital I was given nothing in the way of information, about how to avoid a second stroke, that sort of thing. Things may have got better since, but we’ve still got a long way to go.”
A significant challenge, Professor Markus says, is to change the perception of stroke among doctors and the public. Scanning units should be available 24 hours a day, and to achieve this regional specialist centres may be needed. Such changes have been achieved for heart care, so it is not impossible, he says, but it calls for commitment and a reorganisation of services, which have so far been lacking.
Joe Korner, director of communications at the Stroke Association, said that the present situation was unacceptable. “For many years the Stroke Association has been concerned about the UK’s poor record in stroke care compared to other countries,” he said. “That is why we have been campaigning hard to try to improve stroke services.
“The Government, with a new stroke strategy in development, has shown a commitment to improving the future of stroke care across the UK. But it is vital that stroke gets the priority and investment it needs.
“Without investment hundreds will die needlessly. Public awareness of stroke also needs to be increased so that people can recognise the warning signs.”
Dawn Primarolo, the Health Minister, said: “In the last ten years the treatment of stroke in the NHS has progressed rapidly - more patients than ever before are being seen by stroke specialists, numbers of stroke deaths are falling and advancing medical understanding gives every prospect for a real revolution in stroke treatment over the next few years.
“The National Stroke Strategy - setting out proposals for modernising stroke prevention, treatment and care - is currently out to consultation.
“It was developed with the Stroke Association and stroke survivors and carers, and was debated by Parliament. It follows £20 million invested in improved research into stroke and additional tools and support for hospitals on stroke prevention.
“Although we have more improvement to make to the numbers of people given clot-busting thrombo-lytic drugs, there are hospitals, such as King’s College, that are matching the best in the world.”
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My 83 year old mother was found lying at the top of her stairs by her carers, having suffered a small stroke.She was very cold, in pain all down one side, and could no longer speak properly. The doctor who came called an ambulance and had her taken not to hospital but to a care home, for which she had to pay. Nobody informed me until the following day! When I asked why she had not gone to hospital, her social worker said "We are not having her taking up an acute bed". Why not? Is she not worthy of NHS care because she's old and has dementia? She was otherwise physically perfectly fit, and for years had managed to care for my disabled father right until his death the previous year. If I or my husband were to suffer a stroke now, I do not think we would go to a care home, but to general hospital where we could be given proper tests and checked out - but then, we are not in our eighties.
Anne Dunn, Bandford, Dorset
Dawn Primarolo sounds so complacent, Kings College may be good but we want the rest of the hospitals in the UK to match up.
The cost of after stroke care must be appallingly high compared to that of speedy attention to limit damage, let alone the unnecessary human suffering, and disability..
When will this government have joined up thinking when it comes to budgets - spend x amount in this department, save xxx amount in that department.
Not any time soon I think - Brown didn't show any when he was Chancellor.
Anna, camberley,
Kings College may match the best in the world? So what? How complacent. We need the same expertise in all our hospitals, available to all people.
The aftercost of treating patients affected by stroke must be collosal when compared with cost of drugs and treatment to limit damage at the onset.
When will this Government have joined together thinking in budgetary terms............spend x in this department, save xxx in that department.
The existing Prime Minister did not exhibit any skills in this direction when he was Chancellor.
Anna, camberley,
A few years ago a former teacher of mine, in her 80s, had a major stroke . Fortunately for her, she lives in Dublin, and the care she received in hospital there was so very good that within a few weeks she had regained the ability to walk, talk and even write. A few weeks later she was able to resume fully independent living in her own home, where she has remained.
Had she been unlucky enough to have that stroke in England, I am quite certain the NHS would either have simply allowed her to die, or (perhaps still worse) cared for her just well enough to allow her to become a helpless, long-term patient, spoonfed, frustrated and unhappy. One of these two alternatives appears to be the usual fate of most stroke victims in this country. Recovery is possible, but is seldom given any real chance.
Gill, Southampton, UK
My mother had a severe stroke on Sunday July 1st. Within 1 hour of my telephone call to emergency she was wired up in intensive care having had a scan and my father and I having met with the doctor.
She spent 10 days in hospital, this being Spain we were expected to take care of her needs. We are lucky in that either my father or I could be with her 24 hours of the day. The broken reclining chair did not offer comfortable nights but knowing that my mum was never alone, never wanted for any attention, made up for that.
Perhaps the UK national health service is trying too hard to be all things to all patients. By removing the need for a nurse to empty a bed pan, change a bed, feed a patient they are able to do the things nurses should be trained to do.
Mum is home now and learning how to walk & talk but we are mightily releaved that we are in Spain & not in the UK.
Julie Price, Pedreguer,
When my mother had a stroke 8 years ago she was still on a trolley in the hospital corridor some 9 hours later, until I kicked up a fuss, got her into a bed and seen by a specialist â but it was too late to have any meaningful effect on the outcome. She never really recovered.
When I had a stroke 3 years ago, my GP organised an ambulance to take me to the village football field where a helicopter was waiting with a doctor and nurse to take me to hospital 25 miles away. I was scanned immediately on arrival and clot busting drugs administered â all well within the 3 hour critical period.
Why the difference in treatment?
Iâm in France â my mother was in Leeds.
Glenis Bartle, Ste.Anastasie, FRANCE
I suffered a stroke 6 years ago aged 43 in the early stages when you really need it to be treated as the earlier the less severe i was left for 3 days while the nhs dithered ,in my local hospital what stroke wards there were full up with the long term so you were put anywhere where there was a bed it was just god`s will that i lived to tell the tale so this report comes as no surprise to me .
nigel, iow,