Nigel Hawkes, Health Editor
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Only a fifth of doctors believe that a national electronic system for storing patients’ records will be secure, a poll for The Times has shown.
More than three quarters are either “not confident” that data will be safe or “very worried” that data will leak once the £20 billion National Programme for IT (NPfIT) is running. Asked how well they thought that local NHS organisations would be able to maintain the privacy of data, only 4 per cent said very well. The majority, 57 per cent, said quite or very poorly.
The poll was carried out online over Christmas. In general, the GPs, who have the greater experience of IT systems, are more sceptical than the consultants. Asked the question “Do the benefits of electronic patient records outweigh the risks?” a narrow majority of all doctors polled said no. Among GPs, the gap was much wider, with almost two thirds doubting that the benefits would outweigh the risks.
The NPfIT is one of the largest IT systems ever attempted. When complete it should store more than 50 million patient records and be accessible to doctors anywhere in the NHS.
The system also offers other advantages, including electronic prescribing and the rapid transmission of X-rays between doctors. But achieving its ambitious targets is proving tricky and it is years behind schedule.
When it was announced, little effort was made to consult the medical profession or the public. The Government is now paying the price, with scepticism in the profession and evidence that some patients will fight to keep their medical records off the system.
Admissions by the Government that data on millions of families had been lost by Revenue & Customs, and that nine NHS trusts had lost patient data, have sharpened the security.
The poll, carried out for The Times by Doctors.net.uk, shows that while doctors see virtues in centralised electronic records they are also well aware of the risks. More than two thirds (70 per cent) agree that such records will improve patient care. Consultants are more strongly in favour than GPs, with 78 per cent agreeing or strongly agreeing that care will be improved, against 53 per cent of GPs. There were 640 respondents to the question about database security.
“The poll shows big cultural differences between primary and secondary care,” said Shaibal Roy, operations director of Doctors.net.uk, which has more than 151,000 doctors registered. “GPs have had electronic records for two decades, and the key difference this poll shows is that doctors more experienced with IT are more concerned about it. They all agree that electronic records in GPs’ surgeries are important, but do we need to share them?”
The poll also asked doctors if they thought that a patient’s record should be accessible to private healthcare providers. They were evenly divided, 43 per cent saying that they should and 41 per cent that they should not. Asked if they thought that the medical profession was prepared for the transition to electronic records, only 29 per cent said they thought it was, against 66 per cent who thought it was not.
Feelings were mixed over the extent to which patients should be able to control access to all, or part, of their records. By a majority of 54 per cent to 40 per cent, doctors agreed that patients should be able to limit access to parts of their records. But more than two thirds were against patients having a veto over their entire record.
Dr Roy said that NPfIT and Connecting for Health, the NHS organisation responsible for implementing it, should see the poll as a warning sign. “When I talk to colleagues in Europe, where they don’t have any systems as ambitious as this, they are astonished that people in the UK aren’t keener on NPfIT,” he said.
A pro forma letter written by anti-NPfIT campaigners is available on a website for patients who want to object to their details being included in the database. The letter, on www.nhsconfidentiality.org, is designed to be sent by patients to their GPs. The Department of Health said that patients who chose to opt out might not get the best emergency care.
Lost information
— HM Revenue & Customs has admitted losing two CD discs containing the details of 25 million people - the entire child benefit database - which were posted to the National Audit Office
— Nine NHS trusts lost details of hundreds of thousands of health records
— Details of three million candidates for the driver theory test have gone missing from the DVLA in Swansea
— Earlier breaches by the Revenue & Customs include the loss of a laptop in October, stolen from the boot of a car, and the loss of a list of address and account details of customers of the investment bank UBS
Source: Times database
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But its all right - the Home Office will check everyone that has access to make sure they are suitable people to have such sensitive information at their fingertips. There's nothing to worry about, honest ...
KR, Stockport,
Why have they spent £20 billion on something the patients have no interest in and Doctors don't want.
Considering people can now book their own flights/travel, bank online, shop online - isn't it time patients took control of their own health record anyway?
I read recently in e-health-insider how you can now create and manage your own health record with nothing more than just a mobile phone. It's an old saying that patient trust is earnt not given - it seems the NPfIT believe Trust is Taken!
Phil, London,
What do doctors know about data security? A lot. SInce Hippocrates it has been an interest of the profession, since IT was introduced into medicine - by doctors, always - it has been something we have had hands-on experience of running. You'll also find us in security-oriented technical lists such as UK-Crypto.
Fag packet... After over 30 years of work, there remain significant problems that have not been solved. The system we are being pushed towards may well have been designed on some small piece of card, but I suspect it was hand-waving from the start.
Own records. Er totally missed point there, citizen. We are a little concerned that you may not appreciate your neighbours having access to your records, we already offer you a copy of yours, at some slight inconvenience and delay, or in my office you can sit and read them.
John, my home county friend, we are required by NHS regulations to publish details of ourselves and our staff. We want to hold yours in confidenence.
Dr Adrian Midgley, Exeter, England
You are right to highlight this survey. I am a former GP and health service researcher both for WHO and the precursor of NPfIT. I have worked with electronic patient records (EPR) since 1973 (when the very earliest GP systems were set up). EPRs are great. But there is absolutely no need to have a huge database with 200,000+ people having access to your data and mine. There are ways of making the information shareable, and have been for many years.
You should be aware that, whilst GP's own systems have been developed in order to look after individual patients, as well as to make possible epidemiological studies on their practices, the NPfIT database is primarily being developed in order to make PBR (Payment by Results) and other government initiatives work. These are all geared to privatise the NHS, and to let private companies such as Serco and Netcare run choice bits of the NHS. It is also necessary in order to extend the idea of a "market" in healthcare.
Dr P J Burton, Winchester, UK
'Not trying to be funny, but what do doctors know about data security?'
Well, we have maintained confidential patient records for many decades, without any of the breaches this incompetent Govt has become famous for. Will that do?
Graham Doll, Torridon, Scotland
Louis Blanc - Doctors are not being secretive about patients having access to their own records. They have that access now anyway. What we are concerned about is every Tom, Dick and Harry in the NHS (and probably beyond it) having access to your records (or indeed my records). The thing will leak like a sieve. Do you want everyone to know about your extra-marital affair, your STD, or any other piece of information you have imparted "Confidentially" to your GP? If you don't, you need to start making your voice heard NOW.
David, Daventry,
One of the most important duties of a doctor is to protect patient onfidentiality. I have no problem with patients accessing their notes. They are reasonably secure when held on a server in each individual practice. Notes are becoming less secure with PCTs (many administrators) having access to GP servers, and will be very insecure when all notes are on a National Server Farm where hundreds of thousands of people can acces them. They will be easily linkable potentially to tax records, police records etc and in the wrong hands could be used for a targeted smear campaign. The minister for health already has legal access to everyone's notes without their permission.WIth notes all on one site it will be even easier access.Do you want your records leaked to a national newspaper, or your medical details used in identity theft? Patients must be able to give informed consent rather than the government's approach of informed dissent regarding the potentially unsafe storage of medical records.
GP, Chichester,
Are we surprised?
We are required provide information to the State which ends up in a skip or is "lost in the post"! Most of what we do outside the house is recorded In the name of "security" and
"progress". We are one of the most "watched" countries on earth and now our electronic medical records are to be stored, centrally in an outmoded system and accessed by who exactly, for precisely what risk or benefit; with what safeguards?
It's an Orwellian vista likely to engender an even greater lack of trust than we have created in the last decade. People increasingly live behind closed doors and don't trust their neighbours. Now it seems they will have reason not to trust their doctors, who are telling us THEY ARE CONCERNED: so be afraid, be very afraid!
Such things "appear" under the guise of a well established democracy but ordinary people in this "Brave New World" are watching too!
Is 1984 finally here?
Well Mr Brown, are we going to be consulted?!!
Alison Hugh, Harpenden, UK
Not trying to be funny, but what do doctors know about data security?
Steven Beeching, Camberley, Surrey
Why are the doctors being secretive about patients having access electronically to their own records. What is so secretive about patients records that the doctors dont want us to see. I suspect NOTHING.
Why do doctors feel offended they were not consulted when the system was being designed. Well, this system is not 'rocket science'. Its just a recording system which can be designed on the back of a fag packet.
Louis Blanc, Walsall, UK
You look at GP's websites and see staffs' names plastered all over them - a fraudster could then find out peoples places of employment and use this in conjunction with other information they have about them - if doctors and nurses are not concerened about their own information, will they be that concerned about patients?
John, Surrey,
Also that the system itself isn't as good as some already in use, but they have to be dropped, because of the politics involved.
Health Professional, Manchester,
not to mention the publication of the personal details of 34,000 junior docotrs applying through the online national recruitment system in march 2007.
junior doctor, london,