Carol Midgley
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Take a look at the doll in the picture. What do you see? You'll probably notice almost immediately that its face is not as “regular” as the rosebud-mouthed, snub-nosed dolls that come as standard in toy shops. But if you picked it up and examined it more closely, you'd see that they are not the only features that you don't find on a “normal” doll: a horizontal crease in the palm of the hand, the ears set low on the head, a flattened bridge across the nose, a slightly protruding tongue.
This is a Down's syndrome doll, designed with the aim of giving Down's children a toy that reflects themselves as they are, and not the mainstream version of physical perfection trailblazed by the likes of Barbie and Baby Annabel.
They are not the only “disability dolls” available on the market. Far from it. You can buy dolls with prosthetic limbs, walking frames, hearing aids, “blind” dolls complete with guide dogs. When Mattel launched Becky - Barbie's friend in a wheelchair - it sold out within two weeks. In the past few years, the toy industry has been waking up to the fact that it makes good financial sense to cater for overlooked consumer groups.
But Helga Parks, who is one of the few people producing Down's syndrome dolls, insists that money is not the motivating force for her (she sells around 2,000 dolls a year at $50 each - a nice annual earner of around $100,000). Many years ago in Germany, she says, she watched the face of her late niece, Angela, who had Down's, light up when she was given a doll with facial features like her own to play with. Angela, who died at the age of 9, pointed to her doll and said: “This is me.” Such toys are used in kindergartens in Germany to educate children about, and to destigmatise, disability. “It was very touching,” Parks says. “It made me realise how important toys like this are to help build self-esteem for kids with Down's.”
So she started marketing the dolls in the US, where she now lives, via her website, downsyndromedolls.com. There have been some derogatory and offensive remarks (one blogger said: “The whole thing just reeks of a bad joke”) so Parks has had to put a disclaimer on her website. But the main reponse, she says, has been overwhelmingly positive.
Her new venture is producing hairless dolls - “Chemo Friends” - for children undergoing chemotherapy. The dolls come with a built-in port below the collarbone, which Parks says makes it easier to explain, for example, a catheter to a sick child. There is also an “Anatomical Teddy”, which has an oesophagus, stomach, pancreas, kidneys, liver, bladder, anus and rectum, so that medical procedures can be explained in a less frightening way to children undergoing surgery. But it is the Down's dolls that have so far proved the biggest success. Parks also sells regularly to the UK, Australia, South America, Saudi Arabia and many European countries.
Meanwhile Donna Moore - whose company Downi Creations (downicreations.com), in South Carolina, makes eight different types of Down's doll - has been embraced by some professionals working with Down's children. This branch of the business is non-profit-making. A former special needs teacher who became close to Tim, a young boy with Down's, she became disabled herself when a rare eye disease, pseudoxanthoma elasticum, rendered her legally blind with no central vision. Unable to continue in her career, she says she felt a “God-sent” drive to create a Down's doll.
Now obstetricians use her toys to educate new parents about Down's syndrome, as do the staff of maternity wards. Photographs of her dolls, which include 13 features of Down's syndrome and an “incision” on the chest marked with a red heart to reflect the high number of Down's children who have to have heart surgery, were chosen to illustrate a textbook on special needs education.
On the website, Frank J. Murphy, managing director of a US parents' foundation, is quoted praising the dolls' “sheer beauty” and “positive portrayal”. Chris Burke, who played Corky, a young man with Down's syndrome, in the TV series Life Goes On, also gave his support. One of the dolls is named after Tim, now 24, who still visits Donna. “When a child with Down's syndrome picks up a regular doll, he doesn't see himself, he sees the world's perception of ‘perfect',” she says. “Our society is so focused on bodily perfection.”
Indeed it is. In their own way, disability dolls could be seen as an antidote to the “Bratzification” of children's toys. Many parents are appalled by the sexualisation of dolls such as Bratz, with their trout-pout lips, ultra-skinny waists, high heels, miniskirts and midriff-baring tops. Such enormous sultry eyes and oversized baby heads bear little relation to the realistic human form, yet they are hugely popular with young girls who may grow up receiving the subliminal message that this is the standard-bearer of female beauty. The recognition that disability exists in the toy industry at least redresses some of the balance.
Carol Boys, chief executive of the Down's Syndrome Association in the UK, says: “Anything that helps to 'normalise' Down's syndrome and promote inclusivity has to be a good thing. If the Down's syndrome dolls give joy to those with the condition and their siblings, we fully support them. However, there is a range of products on the market of varying quality and accuracy, so we would advise people to purchase with care.” Boys adds that it is difficult to know with any certainty what Down's children generally think of such toys: “We have no idea what they think of such dolls, because there has never been any research done to find out.”
However, some professionals have their reservations. Jenni Smith, a chartered educational psychologist in London, says: “I feel that children who have disabilities, including children with Down's syndrome, tend to see themselves as ‘like everyone else' and to offer a toy that ‘looks like them' may only emphasise the difference.”
She adds that, if a child has a temporary condition, such as a broken leg, which requires the use of a wheelchair, that child may feel an affiliation with Becky, who also needs a wheelchair. But those children who may have a lifelong condition such as cerebral palsy, which requires the long-term use of a wheelchair, “may wish to affiliate with a free-moving child and in fact see themselves as a normal, free-moving doll”.
“In early research into race stereotypes, in which black children were asked to choose from three dolls - one black, one brown and one white - and say which doll they would be most like, almost all chose the white doll,” Smith says. “This research is old and things may be different now, but it suggests that children want to identify with themselves as a positive, generally accepted image, ie, non-disabled, except in a short-term disability.”
It's too real: a doll should be an escape into fantasy
by Rosa Monckton
I am probably not the best person to write about dolls: I had only one doll as a child. It was a fragile, porcelain creature, attired, bizarrely, in a wedding dress, complete with veil. I looked at it through the cellophane lid of its box, and very rarely took it out.
However, my daughters went through all the doll phases, from unidentified ragdolls to Pippi Longstocking through to Barbie. So why do I find the idea of Down's syndrome dolls so offensive and patronising, particularly given that I have a 13-year-old daughter, Domenica, who has Down's?
I suppose the whole point about dolls is that they are a way of escape into a world of fantasy and make-believe. How many real people actually look like Barbie - apart from the surgically enhanced? What is freakish about these Down's syndrome dolls is that they look real, but are inanimate. When I showed pictures of them to Domenica her response was immediate: “Yuk, it would give me nightmares.” That might seem rather a shocking reaction but it does not indicate that she has any problem with real children who have Down's syndrome. She has a friend with the condition and treats her no differently than she would any other person. It is not the otherness of the Down's syndrome doll that she finds upsetting so much as its eerie realism and attention to detail. We would all find a doll that looked exactly like us equally disconcerting.
Domenica has reached an age when she is beginning to realise that she is different from other people, and her response is to throw herself into teenage culture. She has moved on from Barbie to other things. On her bedroom wall there is a huge Hannah Montana poster. Every night she stands in front of it, and asks Hannah Montana to step out of the poster and teach her to sing and dance. Hannah Montana is who Domenica wants to be: she does not see herself primarily, or even secondarily, as a child with Down's syndrome, and I am sure would not welcome a doll that would suggest anything different.
Domenica's childhood is as full of joy, pain and sorrow as any other. She should be defined by her common humanity rather than by her Down's syndrome. She does not want to live in a parallel world peopled with Down's syndrome dolls distinguishable from the rest. She does not want to be defined by her facial features, or by the gap between her big toe and the rest of her toes being wider than most, or that she is half the height of her peers. Still less would she want these differences portrayed in a series of sickly looking, politically correct mannequins.
Somehow I don't think many of these dolls will be taken out of their boxes.
It's 'orrible...but I like the thought behind it
by Simon Barnes
The Downsie dolls strike me as ugly, disturbing and rather sinister. But then Action Man's ripped torso and Barbie's twin bazookas also give me the creeps. It's not the Downsisness that's the problem: it's the dolliness. After all, my younger son has Down's. To be frank, I am reminded of the plans for the defecating doll in Withnail and I: “It's 'orrible, really, but they like that, the little girls.” So maybe they'll like this as well. Or maybe not. I'm not overly bothered.
But the project seems to have a good heart behind it: and believe me, you get to value such things. It's a generous attempt to say that people with Down's syndrome should be included in all aspects of our lives. I don't go for the medium much: but I go for the message all right. The quality of my life depends on it.
Eddie is included, you see. He goes to the mainstream school in the next village, and does all the normal things: and that's the most important thing in the world for him. For me, it's also important that he can be included everywhere we go. A pub lunch; Pizza Express; a café for cake; public transport; beaches; the zoo; local shows: we go to them all. No one turns aside in distaste, or if so, the changes in society - the kind we sneer at as political correctness - inform the turner-aside that the problem is with him, not with Eddie or me. No one has ever told me that I should keep Eddie locked up where he won't upset people, as they did in the old days.
Occasionally he gets it wrong in public: cuts up rough, goes irrational, gets silly, makes a din, requires a bit of interventional parenting. He is a serial cutlery-chucker. We have, then, a need for tolerance. We live in the country and have our regular places to visit: nobody has made us feel unwelcome. And all this comes from a new default mechanism in society: that is to say, the belief that we need to be inclusive rather than exclusive: that people who are different from ourselves still have a right to participate. Eddie's schoolfriends will have a better attitude than their parents: and their parents have all been great.
People with Down's syndrome are people, not syndromes. The more such people we bump into in our daily lives, the less of a big deal it becomes. The Downsie doll is just one more minor symptom of a major change. The doll is 'orrible, but I like it. The thought behind it, anyway.
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I had a son that was born with downs. When I see the doll or a child with the sydrome I see a perfect child. People tell me that when he went to Heaven he will be normal? What is normal? I think he was perfect in every way and people should be as lucky to learn their love and happiness.
Heidi, Spring Hill, USA
Please don't define people with Down syndrome, or any other syndrome or disability, by their diagnosis. My daughter "HAS Down syndrome." She is not "a Downs baby." This is just something she was born with like her hair color or eye color. It does not define her. She is SO much more than just Ds.
christina, Tucson, USA
I think it is sick to say the least! There might be a idea behind it, but I honestly can't see that a Down's syndrome child would be capable of distinguishing a normal doll looking any different to themselves, to one of these dolls. Therefore what makes you think they will relate with this any bet
Tanya, Private, United Kingdom
let's not pretend (unless your child is still very young) that downs children are the same as normal children why do you want that to be so? because you aren't satisfied with the differences? accept them as different - everyone else does it's great to know people are just like you, isn't it?
alison benoliel, saltburn by the sea, cleveland, england
I dont care wether these dolls sell well or not but what I do care about is the language, Please please learn that these children should not be referred to as Downs children but children with Downs Syndrome and never should the word downsie be used to describe them
Sandy, Newquay, Uk
I agree with most of the comments here. My friedn Kevin was born with an abnormally large cranium, and he was absolutely delighted when the Mr Potato head toy became available in the UK.
Jim Eel, London,
I was in a coma brought on by an asthma attack, for 99 days. Needless to say I had a l o t of Pt. I say that to explain my 11 years in a wheelchair was necessary, I now walk. This is needed for learning info if nothing else. I would have loved to have this when my daughter was into dolls.
Dianna, rockledge, usa
why cant everyone just get over themselves... and others for that matter. who cares what you have or dont have. GET OVER IT!!! if someone likes the doll so be it. they arent hurting anyone. and if you don't, then don't buy it. just like Stella, Beijing, China wrote..it doesnt have 2 b black & white
amber, parsippany, USA
As a mother of a child with dwarfism, I know that I and many mothers of these children wish there were dwarf dolls. I remember a good african american friend of mine being so pleased when dolls resembling her were finally made. I think its no different. Kids want a doll that looks like them.
Katherine Barton, Turlock,
I think these dolls are a good idea. I wouldn't buy it necceseraly for a "disabled" child, but it be able to teach children to see how there are people with special needs in the world. This will be better then mainstream brands which promote idealistic beauty!
Matthew, Wisbech,
well as the mother of a 6 years old son with downs syndrome im gutted that anyone would think that a vile looking piece of plastic could actually represent my child !! he is a child after all not just a long list of differences. i dont think there is a market for these dolls and they should be stop
Joanne, west midlands, uk
" how would you feel if it was bought for your child?"
Much as i'd feel if any other doll were bought for my child. Why would it be seen any other way? Down's, cancer or blindness is nothing to be ashamed of.
Jean Jones, Edinburgh,
Part 2>>>> However, I think that it is valuable to have a conversation with the child of why the doll may be unacceptable to them. It is a great idea to have these dolls in schools to help educate other children.
Claudia, Seattle, Washington, USA
I think this is a really interesting article.
My opinion is that it's great to have a choice and I am sure many kids with difficulties and disabilities would love them, so that's great.
But I really take the point made by RM of Edinburgh, how would you feel if it was bought for your child?
David, St Albans, UK
My boy has Down Syndrome, and we have several of these dolls, as well as numerous (nice) pictures of other kids with Trisomy 21. Today he is 8 years old, and he knows he's a little different. And though he no longer plays with the dolls, he did appriciate the difference, and liked them.
Mark, Southern , US
My youngest son has Achondroplasia, a form of dwarfism. Aside from the few other kids we have met with dwarfism he has nothing that he can relate to with his "disability". I don't think of him as disabled but others do because he is limited in certain areas. The dolls are great!
Becky, Ohio, USA
Becky, Urbana, USA
How does one become classified as 'illegally blind'?
Victoria, London, UK
Surely this is an area where parents and carers have to make their own decisions. It is too sensitive an area for any other approach, I feel.
Anthony Price, Truro, Cornwall, UK
I wonder how the parents of a child with Downs Syndrome would react were the child be given a Downs Synrome doll by friend/family as a present?
RM, Edinburgh,
You write that Helga Parks "sells around 2,000 dolls a year at $50 each - a nice annual earner of around $100,000". Why take that tone ? $100k gross sales is probably $40k profit which is about £20k, a modest income. Less cheap cynicism please.
nick white, exeter, uk
The article uses the phrase "giving Down's children a toy". The better term to use is "children with Down's". And why? The child always come first and the condition second.
Alan, Amsterdam, NL
Why does it have to be black and white? Everyone would inevitably have a mixed opinion about these dolls with disabilities, but for those who find them helpful for themselves or their children should at least be given the option to own one, and these companies have the right to cater to that group.
Stella, Beijing, China
I once did special effect treatment on an old Tiny Tears doll at Halloween I was going to a party as Dr Frankenstein the doll was my monster. I hid it in a shoe box all evening. Revealling it I shocked many women present as I'd killed Tiny Tears A plastic doll can elicit a great deal of emotion.
Rob, London, UK
The downsyndromedolls.com seem like caricatures, with too much focus on exaggerated stereotypical features. As the parent of a child with Down syndrome, I think they are ridiculous and do not accurately reflect what real children look like. The Downi dolls a certainly better in that regard.
Brian, Atlanta, US