Dr Copperfield
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Even by the standards of news media that insist on a Daily Breakthrough, this week has been medically miraculous - particularly if you're worried about Alzheimer's. Statins may help to treat it. So might blood pressure pills. So, too, a drug normally used for rheumatoid arthritis. Ditto one that untangles knotted neurones.
Interesting stuff. But maybe not as interesting as the revelation that, if you think you have Alzheimer's, you probably don't. Whereas if you're adamant you don't, you possibly do.
The explanation? Imagine this scenario. You're an hour late for your appointment because you're sure it was booked for midday, when I should be slurping coffee, not 11am, when I was busily typing “did not attend” into your notes. You last saw me four weeks ago and insist that I was a female doctor who gave you tablets the name of which escapes you. And you've forgotten why you booked to see me in the first place.
“Ah, that's it,” you exclaim. “My family's worried I've got Alzheimer's. But I know I haven't.” Two things occur to me. First, I mustn't forget to refer you to the local memory clinic. And secondly, this is a classical case of a patient being “in denial”.
Denial comes in various shapes and sizes, from the morbidly obese who blame their glands, to adolescent diabetics who would rather let their sugars reach coma levels than admit to their condition.
Even more common in general practice is the opposite of denial: insisting that you have a certain disease. This phenomenon is so rarely aired that it doesn't even have a name. So let's go with being “in insistence”.
Here's how it might work with Alzheimer's: the patient “in insistence” that she's dementing in fact isn't. Why? Because patients with Alzheimer's typically lose insight into their problems. That's why they're dragged disbelievingly to the GP by frazzled relatives. Whereas patients who insist that they've got it will inevitably have some harmless cause for their mental state, such as having to cope with the kids during the school holidays.
Not convinced? OK, try, “I'm depressed, doctor.” I guarantee the diagnosis won't be depression. It will be a reaction to being dumped last week by your boyfriend - something we GPs refer to as “unhappiness”. Patients “in insistence” want the quick fix of happy pills, whereas what they actually need is a shoulder to weep on.
As for patients with real depression, they never use the “D” word. They'll admit to feeling tired, sleeping poorly, going off sex or not caring that the football season's about to start. Anything but depression, in fact - possibly because they're scared of the treatment and so don't want their doctor leaping to the correct conclusion.
Not that these unwritten rules are limited to dementia or depression. Whatever your symptoms, the more certain you are about the diagnosis, the greater your chances of being hopelessly wrong. Convinced you've got flu? It's a cold. Certain it's ringworm? Eczema. Reckon it's chicken pox? Insect bites. Think it's insect bites? Chicken pox.
Even on those rare occasions when patients “in insistence” are spot on, it does them no good. Because doctors universally adhere to the golden rule that the punter with diagnostic conviction must be incorrect. Plus GPs have a professional obligation to resent and ignore patients who think they know a bit about doctoring.
The message is clear. Being in denial isn't good, but being in insistence is worse. So if you're convinced, say, that you've got diabetes, you should casually and innocently volunteer the classical symptoms, but bite your dehydrated tongue at the crucial moment, and let your GP think he's reached his own brilliant diagnosis. If he fails to take the bait, prompt him by whipping out a urine sample.
And if he still looks blank, tell him you're concerned it's Alzheimer's - and that he should book himself into the memory clinic.
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I distrust Geepees generally. Good for cuts and bruises.
Methinks they are legalized drug dealers. If they are not comfortable with patients telling them what the illnes is and what medication they want to have perscribed, than they should stop writing narcicistic "help" articles in this paper.
robert, vancouver, bc
I woke up paralysed down one side aged 24. Drs said it was a hemiplegic migraine - I thought it was a stroke. A week later they did an MRI scan which proved I'd been right, it was a stroke but now too late give me clot busting drugs.
It's about time Drs realised that patients know their own bodies
Niki, England,
My husband was wrongly diagnosed and treated for two years because the doctor thought he knew best. He died from Hodgkins lymphoma which could have been treated if diagnosed. We pleaded and pleaded for them to reassess him but what does thepatient know!!!!!!
Please please listen to your patients
barbara, north east,
My father thought he had DVT. His NHS GP in effect told him to get lost. My father had BUPA cover so he then went to them. Again the doctor there doubted he had DVT, but as they can claim for the ultrasound test to find out they gave him the test. He was in hospital an hour later as he had DVT.
Peter, St Albans, UK
I asked to see a neurologist.
All my symptoms pointed towards m.s.
It was refused.
6 yrs later I'm in a wheelchair with multiple sclerosis.
I was right then.
Ms BlofIeld, Kent, UK
As a patient with a backgound of clinical work with doctors and ability to write medical papers, being 'in insistence' has showed up the lack of knowledge of several of my GP's. I have been vindicated by specialists afterwards as being correct- the GP's wrong.
Edna, UK,
I asked for a test for osteoporosis and was told that the only way of finding out if one had the condition was to fall over and broke a bone.
Clearly some doctors still think they can fool their older patients with any nonsense.
Pauline, Plymouth,
I completel agree with Iain. Dr Copperfield's article offers valuable insight into the grand egos of many doctors. The message is clear: it's flattery and diverting the eyes downwards that results in effective treatment. Not any insight that can be shared.
John Carroll, London,
I had to tell my doctor I suspected I had osteoporosis.
The Tory invention of fundholding had prevented the GP practice from sending any of their middle-aged patients for "expensive" bone scans. Once fundholding was abolished (5 years or so later) I managed to get her to act on my fears.
Rosie, Bath, UK
For myself I will not use a doctor who is not willing to enter into a dialogue. The days when doctors where godlike beings whose word was law are long gone, and good riddance to them. As the patient I am more motivated than the doctor to research my ailment and I may well have more insight than he
Ian, Frederick, USA