Simon de Bruxelles
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At an age when most teenage girls are thinking about school, boys and pop music, Hannah Jones is hoping only to be allowed to die with dignity. Hannah, who is 13 and terminally ill, has persuaded a hospital to withdraw a High Court action that would have forced her to have a risky heart transplant against her will.
Although the operation should prolong her life, it would only provide temporary respite. Instead, Hannah said she would prefer to spend her remaining days in the care of her family rather than take the chance of dying in hospital. The decision to drop the action was taken after Hannah was interviewed by a child protection officer.
Her mother, Kirsty, an intensive care nurse, and her father, Andrew, an auditor, say they respect their daughter’s wishes and are angry that the hospital brought the action.
Hannah has been in and out of hospital after having leukaemia diagnosed at the age of 5. The chemotherapy left her with a hole in her heart and, as her body has grown, her heart has been unable to keep pace.
However, doctors have warned her that a heart transplant is risky and that, even if it succeeded, the drugs used to prevent her body rejecting the new heart could prompt a recurrence of the leukaemia.
Hannah, from Marden, near Hereford, made her decision after talking to doctors at Birmingham Children’s Hospital, where she had a pacemaker fitted earlier this year, and Great Ormond Street, which would have performed the transplant. The family believe that it was a locum doctor at their local hospital in Hereford who reported the case to the child protection unit after Hannah had been taken home by her parents.
The first the family knew about the action was when they received a phone call telling them the hospital was applying for an order removing Hannah from the family home on the grounds that her parents were “preventing her treatment”.
Mrs Jones, 43, said that the locum doctor had wanted to give Hannah a drug to facilitate her transfer to Great Ormond Street for the operation. “The doctor wanted to give her a drug she had already said she didn’t want again . . . The family was in tears thinking she was going to be taken from us against her wishes.”
However, Great Ormond Street told the family that they would not admit the teenager without her consent.
After the incident the Joneses wrote to Herefordshire Primary Care Trust complaining about its intervention. In his reply, Chris Bull, the PCT’s chief executive, described Hannah as a “brave and courageous young woman” but defended the doctor’s decision. But after a nurse from the child protection team interviewed Hannah it was decided not to apply for a court order.
In the letter to the family, Mr Bull concluded: “Hannah appears to understand the serious nature of her condition . . . Treatment options were discussed and Hannah was able to express her clear views that she did not wish to go back on a pump or to go into hospital for cardiac treatment.”
Hannah’s father said he was not sure exactly what his daughter had told the child protection officer at their private meeting, “but it must have been powerful enough to convince some very high-up people that she was right”.
“Hannah has been through enough already. To have the added stress of a possible court hearing or being forcibly taken into hospital is disgraceful.”
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You go, girl! It's your body and so it's your choice.
As for the people saying this is what happens with Socialite healthcare, have a look at what the American "health care" does. They will get a judge to force a child to undergo a treatment or surgery, even if the child does not want to .
Nicole, New Orleans, USA
Keep, recover, wounds should be healed
yegor, Dubna, Russia
Hanna !You need to pray before an icon of Kazan Divine mother, it helps girls. Will take out on the sun a towel in the morning, let it will be shined with its beams, rub off by it then and ask God about the help. Keep
yegor, San-Diego, USA
Hannah, I really believe you have made the right decision. Life is to be lived and in your case you are going to live foreeverI am sure of that.A big hug for your brave and sensible mum and Dad
Cristina, HUESCA, SPAIN
For all these who would like to help Hannah to go to Disneyland - there is an organization that does exactly so - the Make a Wish Foundation which became international. Here is a link to UK chapter of it: http://www.make-a-wish.org.uk/ and here is their contact: 329/331 London Road, Camberley, Surrey GU15 3HQ
Stefan Dabrowski, London, Canada
Hannah,
You are an amazing young lady, for making this decision. I hope you read this comment. Just remember that you are fighting for the right to choose and that no-one will think the worse of you if you choose to change your mind. Whatever you choose, don't worry because it'll be okay.
xx
Josie, Pembrokeshire, Wales
Hannah - You're a very intelligent young woman who has shown wisdom beyond her years; you understand that life is meant to be lived, and I hope you live a lot! Thank you for being such a role model to others and an inspiration to us all.
Elizabeth Belanger, Los Angeles, USA
How can I give a few dollars to help you get to Disneyworld?
Vincent ONeil, Ogden, UT, USA
what a brave young lady. my thoughts and prayers are with that whole family in this hard time. corinthians 13:7 comes to mind in this time. be strong and god will pull you thru. my prayers are with you. God Bless and be strong.
Natalie Henne, Arlington, Tx, USA
Hannah, Good bless you! You are a remarkable yound Lady that touched so many of us and you have achieved more then most of us ever will. I would love to help to make her wish to visit Disneyland happen and if there is anyone to contact let me know.
Lots of love and my admiration.
Henri Birmele, Santa Clarita, USA
Dear litlle angel, you are very brave child. Dear Jesus and His
Mother Maria are with you and loves you with all their Hearts.
If you Hannah, angel, have touched my little heart so deeply
than I beleave, you touched a big Heart of Jesus, much more.
Dear child, knock on His Heart, God bless you
Nada Lacković, Sv. Nedjelja, Croatia
Hannah, I hope and pray that you know God and that you talk to him. He may have unseen plans for you that are beyond what you know. Keep your mind open to all possibilities.
Michael Gurley, Birmingham, USA
I understand her feelings very well. I have Multiple Scleroses since 5 years, therefrom 3 years in a wheelchair. I 'm thinking of death every day.
I wish her as much courage as she need to start her last journey.
Sooner or later I will follow her...
Büdi, Detmold, Germany
Hannah,
With only 13 years old your story has traveled round the world, and you touched thousands of hearts. I wish by the time I die I have done at least a little of what you have already achieved.
Diego Escobari, San Francisco, USA
If I had the means I would finance a trip to Disneyland for her. A 13 year old is fully capable of understanding the risks that she faces by undertaking (or not) such an operation. May God bless her and her family in their time of suffering.
Rachel, Florida Keys, USA
God bless you Hanna, Sweet Jesus is with you always, so talk to Him, He always listen because He loves you and because His divine Mercy is the greatest on the Universe . Mary his Mother be with you and confort you. Big hug and my love and admiration.
Susie, Barcelona, Spain
I have no words to describe what I feel. I wroght a song for Hannah!! You can watch it on You Tube. maybe it helps a little bitt. You Tube.com "Hannah´s Song Brandon Stone "
Brandon Stone, Berlin, Germany
Hannah seems to be well informed and wise beyond her years, the medical professionals should respect her wishes if she doesn't want the transplant, its likely she has been living sick and in pain for years and is the only way of life she knows, she knows her fate and is accepting it..
Kelly, Saginaw, United States
Interesting. We won't force a teen to have a baby because it's "her body and her right" but they will force this child to go through a medical procedure against her will. The medical field is truely hypocrital.
Barbara, Las Vegas, USA
First, all the best to this courageous girl and her family, I will pray for you.
Second, take note, Americans, at what a socialist health care system can do...absolute power. In cases such as this, Individual freedom should always trump governmental intervention.
Todd Hudson, Lynchburg, United States
It seems like the treatment for Hannah's leukaemia caused the heart problem... and the drugs required to keep her alive after a heart transplant are very likely to cause the leukaemia to return.
I don't blame Hannah for her decision.
Give her a chance to live a normal life for awhile!
David, Atlanta, U.S.A.
I am at the bedside of my two year old daughter who is recovering from an bone marrow transplant following a diagnosis similar to Hannah. If there is no chance of any quality of life outside of hospital then the decision to have no more of this incredibly gruelling treatment must be the patient's.
Charlotte Norman, Bristol, UK
Bless you, Little One. You have fought a hard fight. As a mother and a family practice nurse practitioner, you have my respect and support for your decision. May you be blessed now with the fullest quality time with your loved ones.
Ann, Chicago, Illinois, USA
Jesus said, "I will never leave you nor forsake you", we pray your hope lies with Him, and the sufferings of this life will mean nothing in eternity. God bless you, and your family, we're praying for you.
Mike , Houston, USA
"Health professionals should mind their own business and let families get on with their lives"
Astrid, Cambridge, England
Take a look at the front page of this very newspaper and see what can happen when health professionals 'mind their own business'. What a ridiculous thing to say.
Andy C, Bristol, UK
I would never want to deprive Hannah of her rights, but if the doctors want to operate then they must have hope for her.
Sometimes when we are young we dont quite understand exactly what is at stake.
Easy for me to say as Ive lived with no problems after a successful transplant for 13 years.
Hannah has been courageously strong until now so I would say to her please give this important operation a chance.
Steve, Braintree, UK
This is what a nationalized health care plan would do in America. Sad to see that she was going to be forced to do it. Keep the government out of our business. so much for individual rights.
Dave , Harrisburg, USA
What an amazing young girl
Alex Samad, Granville, Australia
Sometimes doctors think that they are doing their best for you, but get it wrong. Following a stroke, my consultant wanted to fit a PEG for nutrition, but I resisted, and a month later I was eating aain, and the nurses gave me a nickname, "the gannet". With a PEG I may never have eaten again.
Bill Peter, Kuala Lumpur, Malaysia
What a wonderfully brave girl. Let's hope that miracles do happen for her.
Billy Barnett, HK,
What an amazing girl. It's not the length of life that matters, but the quality of it. The quality of life is limitless, but the length will never be. I hope others will learn to truly appreciate this life, as Hannah has, for what it is: an experience, not a number.
Louche, Washington, D.C.,
You Hannah have touched more people here on Gods green earth than most will do in their entire lifetime. Your story has touched my heart and you and your family will be in my thoughts and prayers.
Devin, Grantsburg, USA
To live with the knowledge that you will die and there's nothing you can do about it is hard enough, but for a child to have to go through that? It's horrible. She truely is a very brave young woman, even if she may not feel like it at times. You and your family are in my prayers.
michelle, columbus, ga, united states
Those who say Hannah is "too young to feel this hopeless" fail to take into account that they have not lived this young woman's life.
You cannot possibly put yourself into the frame of mind of someone who has spent more than half her life in hospital, and who at best faces an uncertain future.
Stan M, Baltimore, MD, USA
Children who are Jehovah's Witnesses face this as well. They have a good, firm faith that gives them the hope for a future. They are well aware of the issues that face them.Governments and health services around the world deny them, and their families, the right to decide.
Judy, Vancouver, Canada
a very brave girl i wish you all the luck in the world and hope for you that something can be done in the future that hasnt been thought of so far
richard, grimaby, england
I do not have anything to say except "Long live Hannah Jones and May God bless you"
Sikandar Jatoi, Ilford, UK
God bless this family. They have had enough.
LaDonna, Jacksonville, US
What a courageous girl and her family! The health authorities are such an OXYMORON body as a whole though, because they'll go to court to disrupt a family's wishes but yet they can pay bonuses to GP for NOT referring patients for further care, and starve patients to death in hospital. God be with U
kim smith, raleigh, usa
If There is a chance Hannah could live a longer life with a transplant then she has to take it you are a long time dead
I would beg you to reconsider your action xxx
Mark, Wigan, England
Being a transplant recipient, I am shocked that forcing a transplant would even be considered. I am incredulous that such pompousness exists outside of the twisted mind of a dictator. May God bless Hannah and her family for this courageous decision, and may they enjoy each moment that remains.
Charlie Meason, Shingletown, USA
Is there anyone out there that has the means to step up and help this young lady see Disneyland?
There are far too many ill children and selfish millionaires in this world.
SM, Louisville, KY, USA
Be well Hannah, I hope you read our comments. It takes a brave heart and a strong soul to do what you are doing. We read this story around the world and feel with you.
Kate, Sydney,
Poor baby, my heart goes out to her and the family...she must be just tired. It's a catch 22 for her and for her to be so young and understand what's more important, like being with family while she's here, is something that i as an adult find it hard to sometimes appreciate..i will pray for Hannah
tspencer, atlanta, usa
I wouldn't get upset as others have at the doctors. I thank God there are people who would speak up trying to possibly save a life. I can only imagine what Hannah has gone through but she is too young to feel this hopeless. This may be her chance to get well. Please Hannah change your mind.
Stephanie, Fremont, USA
Why does a person need to present a rational argument to "high-up" people in order to attain one's wishes to be respected? This is an absurdity, that our lives (and our deaths) are truly being wrested from our control by "experts".
Jason Kennedy, taipei, taiwan
Good luck, baby-girl. You and your family have my most sincere prayers. May your lives be filled with peace, love and respect. God bless.
Miriam, Pennsylvania, USA
My heart goes out to Hannah and her family. As so often happens, people have to fight for the right to be be treated with dignity and intelligence. May her remaining time be as happy, peaceful and media free as is possible.
Robin A, Crouch End,
Just heard this on the news and cried. Hannah wants to go to Disneyland but no one will insure her. How come so many millionaires offer private jets to take the Mccanns on publicity tours to the most obscure places and this little girl does not appear to have a single offer.
Christine, Redruth, Cornwall
Health professionals should mind their own business and let families get on with their lives; blaming the parents is disgraceful - does that busy-body doctor think that Hannah hasn't got a sound mind? Will, Grimsby - what are you on, do you enjoy seeing people suffer? Good luck, Hannah & family.
Astrid, Cambridge, England
Dear Hannah,
I've just watched part of your interview on Sky and I must say you're a very brave and intelligent lady. I hope youll have a great Disney trip and enjoy every moment with your love ones. It'll be great if you're to write poetry on the things you treasure most.
Regards
Linus, Hong Kong, Hong Kong
Instead of pity, let us pray that Hannah's life from here on out is beautiful, fun, enlightening, painless, & hopeful. Does the UK have a Dreams Come True Foundation? If you Brits want to truly give back to Hannah, help her to make every minute of her life joyful! Let every minute count!
Kim, NY, USA
I agree with Hannah. It's her life, her decision. The doctor may have been well intentioned, but clearly didn't take time to actually talk to her and see her side of the story.
Blessed Be
Debra, Toledo, USA
All credit to her for standing up for her rights. She has not stood up for her right to die, but for her right to live at the best quality, for the rest of her life. This is no different to any other human right. I hope she and her family enjoy her remaining days in her chosen environment.
Paul Tinker, Henley-on-Thames, UK
It's working out for the best. They have listened to Hannah and she has told them what she wants.
My daughter is the same age, and I would hope I would have the courage and compassion to listen to her, however much I would want her to live. Let's forget the 'human rights' and think of Hannah.
Malcolm Wilson, London,
This is not bravery; that's being sentimental. It's the innate maturity in a child, which some have, to make a big decision. There is a risk she could die, and it would only be a temporary advantage. She wants to be with her family - who wants to die in a hospital bed? Bless.
Joe, Manchester,
The health service were utterly correct in ensuring that Hannah understood the implications of her decision before allowing her to refuse the operation. Equally, once they were clear that she did fully comprehend, they should allow her to spend her remaining time in the way she wishes.
Sally Kesser, Cambridge, England
This girl metaphorically, takes a big piece of my heart & a lot of my respect & admiration. She gives me a lesson in dignity,courage & assertion. I would have prefered not to make this trade but sometimes decisions are forced upon us.
Michael S. Burkinshaw, Vilagarcía de Arousa, Galicia/Spain
I don't agree at all with Hannah's decision, but I strongly agree that she has the right to make it.
Alex, Brum, UK
Good Luck With Your Decision Hannah Your A Brave Girl X x X
Jessica, Kent, UK
Will in Grimsby, have you ever been seriously ill? This is a child who may well not survive the operation. It will not cure her. It will result in a return of her leukemia from which she will die. This is a high risk gamble for a little extra time that I personally would not want to take either.
John, Newcastle,
Hannah, you are an inspiration. We could all learn from your exemplary behaviour. Our love to you and your family.
Maria, Sydney, Australia
Hannah, all the best. I admire your decision.
Barbara Bindasova, Prague,
shes a 13 year old child, i honestly cannot believe that her parents are not forcing her to have the operation. so it might jeapordise their relationship, her leaukemia might return, and that would be very sad, but surely the chance for her to live her life, even for a few years is worth the risk!?
will, grimsby, uk
Go Girl your very one brave young lady at least you have all your functions working in your head and you know what you want it seems you can handle whatever society throws at you enjoy what time you may have left and keep on fighting
j titherley, mablethorpe, england
Hannah has shown a maturity at her age that most of us lack for our entire lives, worrying about minor issues and making our lives miserable for stupid things. She has set an example for us, again that's much more than most people achieve in 80 or 90 years. Our thoughts are with you, thanks Hannah.
jorge, zaragoza, spain
If it were me I would go for the transplant - but I admirer her bravery !!!!!!!!!!!
IAN PAYNE, Walsall,
Any doctor who pursues this route should be required to reveal any conflict of interest here - for example, personal religious beliefs or membership of any 'pro-life' organisation which pursues the mystical idea of some greater good over an individual's choices in the matter.
David Bachauer, Manchester , UK
Poor love. What 2 dreadful options to select from.
But it does go to show that the big brother society can be bested, although it shouldnt have poked its nose in in the first place!
To P Bull I'd say of course she understands the serious nature of her illness, shes been living with it!
BG
Bill Glanvill, Horsham, England
This young lady is an example to us all. Life is about individual dignity and freedom. She is entitled to hers. God bless.
John Stobart, Oakham, Rutland, uk
A brave young lady. My prayers are with her and her
family.
Jerry Scroggin, Phoenix, Arizona/USA
Hannah is extremely brave and I am certain of one thing, that this Dr did more potential harm to her well-being than good.
Forces Hannah, regardless of their age to have an operation that she did not want is a fundamental breach of her human rights.
Martin Garthwaite, New Malden, UK
It's things like this that make you realise how lucky you are. What an amazing young lady, an example to us all. Bravery beyond measure. I only hope she finds some peace in the love of her family in the rest of her days. God bless
Alasdair MacDonald, London, United Kingdom
My thoughts are with Hannah and her family. I believe that the wishes of the individual are a cornerstone of a free society and this brave and couragous decision is a beacon to us all.
This young lady must be supported in her choice and given the dignity she deserves by right.
Norman Mills, Belfast, Northern Ireland