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Patients with complex conditions are now able to carry full details of their medical histories, including information that could their save lives, on a credit-card-sized smart card.
Doctors say that people who are worried about the security of their medical records are choosing to carry sensitive details of medication, allergies and previous illness in their wallet rather than let the Government put them on the web.
Ministers plan to create a national database to store electronic medical records for 50 million people in England, but, according to the makers of the card, recent data losses by Whitehall departments and fears over confidentiality of the system are leading patients to buy the £40 Health eCard as an alternative. A total of 21 GP surgeries and 300 patients, mainly in London and the South East, are already using it.
The device can be updated after every visit to a GP and plugs into the USB port of any PC, allowing doctors to access emergency medical information. Patients and GPs could access more detailed information using a password.
The company behind the card, Health eSystems, based in Stanmore, northwest London, had said that the card enables patients to check their records for accuracy, to update them when they want and to allow any doctor they consult to see them. Referral letters to hospital, vaccination dates and digital X-rays or test results can also be stored on the card.
The company, which pays GPs £10 to download a patient’s records, says that encryption makes the cards secure. The Department of Health has also stated that its official, online-based system will be secure, because only a “summary care record” with minimal data about patients will be uploaded to the Spine, as the national database will be known.
The database is part of a £12.4 billion programme to upgrade NHS computer systems. The National Audit Office predicts a completion date of 2014-15 for the official introduction of electronic records across the whole of England, but there are concerns about privacy, wrangles over consent and the recent termination of contracts with key software suppliers.
The project, which is already running two years behind schedule, will include a portal known as Health-Space that allows patients to view their records, while doctors and nurses will carry chip and PIN cards to access more confidential information, such as information on mental illness, HIV status, pregnancy, drug-taking or alcoholism.
Julian Godlee, a GP using the eCard technology at the Maltings Surgery in St Albans, Hertfordshire, said that concerns had been heightened by the recent series of data losses by Whitehall departments. “We have all recently witnessed the debacle over lost records of one sort or another that threatens to compromise the security of private individuals as they go about their daily lives,” he said.
Michael Summers, vice-chairman of the Patients’ Association, said: “There are a lot of people who want to hold their own records. I see no reason why that is not the future.”
Only two NHS primary care trusts have uploaded their patients’ summary care records to the Spine, in pilot schemes described as “clunky” in an independent academic study by University College London.
Some NHS hospitals have bought alternative software, at extra expense, to replace the older system of paper-based records as it may be years before the official versions can be installed.
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""Is there anything they'll do (GPs) without being bribed?"
Yes - protest against the Spine. GPs have been in the forefront of protests, even though it would make our lives easier, because we are worried about data loss/theft and the effect on patients.
JB, Cheltenham,
15 years ago at the instigation of the whole thing. We the "now retired" screamed disaster if all patients were not issued a smart card containing a copy of their record. 40 million plus pounds later we now see the result of arrogance over sense. Or was it corruption?
Richardson, Bendejun FRANCE,
I have a complex and potentially fatal condition, plus some serious drug intolerances, and I'd happily stump up £40 if this system is ever universally available. But what of people who can't afford it?
"Is there anything they'll do (GPs) without being bribed?" Essentially, no.
Ron Graves, Birkenhead, UK
An other way for doctors to make a quick buck!! They are already been paid twice. Once by the taxpayer and the other by the drug companies. Its about time we patients had access to our own medical data.
Louis, Liverpool, UK
What a good idea. How about writing it down on paper like we used to or is this too technologically difficult?
Roger Slade, winchester,
If only more people took responsibility for their own medical details this debate would be unnecessary. You would be amazed how many people 'forget' to mention their high blood pressure or have no idea what medication they are taking. Doctors want to provide good care. We are not psychic.
Jenny, Dunedin, NZ
I am Diabetic and wear a MedicAlert bracelet with tthe phone number and a card with details, that is enough. It also works abroad. I have refused to allow my details to be passed any further than my GP.
Ian, Gunnislake, Cornwall
I am a stroke victim who has an anaphylactic reaction to aspirin and NSAIDs. The solution? I wear an SOS bracelet with all the relevant information inside it. Nothing else is necessary.
Anil Chatterjee, manchester,
£12 billion!
Twelve billion pounds.
Twelve. Billion. Pounds.
TWELVE!
BILLION!
POUNDS!
That's 200 pounds for every man, woman and child in the country.
How many hospitals could that have bought? How many schools?
The governent has lost the plot and needs to be removed.
bill, birmingham,
Leesome is correct, doctors accept the diagnosis of their predecessors at face value.
My mother's initial minor stroke might have been identified and her subsequent debilitating stroke prevented if doctors had looked past an early incorrect diagnosis of depression and recognized clear symptoms.
Glen, Melbourne ,
I dont trust the government to hold my health information - too many leaks !
Seems fair that private companies pay the NHS for rather than tax payers funding more beaurocracy. last thing we want is not being able to get a doctors appointment because there wasting their valuable time.
Simmon Cammies, Gravesend, England
More money for GPs for downloading information that it's part of their job to keep - and how many will do any downloading? Just another job to be dumped on practice nurses while GPs with 2000 patients on their lists pocket an extra £20,000. Is there anything they'll do withoiut being bribed?
Jan Thomas, Nottingham, England
"doctors and nurses will carry chip and PIN cards to access more confidential information..."
This is THE WEAK LINK in the system. Lost cards, and stolen cards, will be inevitable and allow unauthorized access.
The private, personally-held, card is the only safe and sane solution.
Bill, Suzhou, China
Sad to know that many will now suffer a mental in tombment, those in particulary with mental health issues, shall now suffer from the pressure of such records. These records remain regardless, imagine walking out of a mental disorder; would not be recovery, be a new person. How negative memories are
Leesome, Glasgow, Scotland