Sarah-Kate Templeton, Health Editor
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LIKE many other British cancer sufferers before him, Rob Ellert travelled to one of America’s leading hospitals to give himself a better chance of survival.
Now in remission, he is so determined that National Health Service patients should no longer die unnecessarily that he has enlisted Lord Darzi, the health minister, to transfer best practice across the Atlantic. He has also set up a charity to promote American-style cancer treatment in Britain.
Ellert, a 61-year-old businessman, is part of a movement demanding a wholesale overhaul of NHS treatment of the disease. It is led by Professor Karol Sikora and Dr Maurice Slevin, two world-leading cancer experts who are based in Britain. They have set out the reforms needed by the NHS.
Figures published last week in the journal The Lancet Oncology showed that survival rates in this country are among the lowest in Europe, on a par with Poland.
Sikora, a former chief of the World Health Organisation cancer unit and now medical director of CancerPartnersUK, a private company, has taken senior Department of Health (DoH) officials on a tour of American cancer centres in the hope that they will bring back ideas to boost British survival rates.
He and Slevin, a consultant at the London Oncology Clinic, a private centre, have devised an action plan which they argue can be implemented within existing NHS budgets:
- NHS patients must be referred to a consultant within 24 hours of a GP suspecting cancer. At present, urgent cases are referred within 14 days, but many NHS cancer patients do not see a specialist for several weeks
- Scans and biopsies to determine how far a cancer has spread should be carried out within three days. At present, NHS patients can wait months.
- Surgery, radiotherapy or chemotherapy should begin within one week of diagnosis. At present, NHS patients can wait two months for treatment.
- Patients should be monitored weekly by a consultant during treatment to detect immediately if it is not working.
- Patients should be given wider access to powerful new medicines.
- Patients should receive the correct amount of radiotherapy at the correct time. A shortage of radiotherapy in Britain means that NHS patients face long delays and may not receive the correct amount of radiation.
- Patients should be treated in the evenings and at weekends to cut queues. In the NHS, expensive equipment is often switched off after 5pm.
Although the NHS has seen some improvements since the introduction of its cancer plan in 2000, experts believe that its targets are not sufficiently ambitious.
Sikora said: “There should be no delays for cancer treatment. A 62-day wait in the NHS is laughable. Patients can be waiting weeks for scans and months for radiotherapy. In Europe and the US this would all happen within 24 to 48 hours.”
Anni Matthews, 53, who is fighting breast cancer, was told by British doctors in February 2003 that she would be lucky to live until the Christmas of that year. Matthews, a former property company director, increased her chances of survival by travelling to the Dana-Farber Cancer Institute in Boston, Massachu-setts, where her treatment was helped by new “wonder drugs”.
Matthews said: “The Food and Drug Administration [FDA] is known to be very pernickety about licensing new drugs due to fears of legal action. If the FDA approves a new cancer drug, why is there such a delay before it is available to British patients?”
The DoH said: “Last November we announced that we were developing a cancer reform strategy . . . We expect to publish the strategy by the end of the year.”
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An interesting paradox -
1: US ( Cancer ) Care is second to none - "Right" care (for those who can get it )
2: according to the US Commonwealth Fund, US Healthcare is worst for safety, access, cordination , efficiency, and equity. 40 million people get no healthcare. It is by far the most expensive health system, spending $6000 per person -more than twice the UK rate.
How are we to square this ?
UK specialists can and do provide their model sameday service - to the private sector, and at a price, just like the US.
What I would be REALLY interested in is COST-EFFECTIVE Cancer care comparisons internationally, objectively assessed, and not as portrayed by 'interested parties'. A recent claim that France was superior to UK, was not upheld on a Euro-for-Euro basis.
I am keen to answer two questions
euro-for-euro, who provides the most effective care ?
given another £10 billion (a 10% increase for NHS) what would we buy ?
Sam Lewis, Newport, Pembs, Wales
Is this the British governments way to 'natural selection' or is it euthenasia by another name?...HANG YOUR HEADS IN SHAME government ministers...third world NHS from third rate government...LOOK TO THE BRITISH PEOPLE...we NEED access to consultants/drugs/equipment...what possible reason can you give for witholding life saving drugs such as Sutent or Nexavar?...You hide behind the 'men in suits' NICE and blame them for YOUR inadequacies...I DARE the government the PCT's NICE or the NHS to proove that people are not dying as a result of their 'passing the buck'...
Kitty, Nelson, UK
these comments are all good for release of public ire but achieve nothing more. it is time we the public raised our voices in anger at this disgusting lack of concern from our so called leaders (govm't)
cancer affects everyone and if the general public could be shown some way to make themselves heard other than the odd protesting letter to papers we may start to get better results. anyone out there have any ideas?
colin, southampton,
This is utterly idiotic. All they have to do is give people rapid access to consultants, then give them access to the drugs and treatments.
What we are doing now is first rationing access to consultants, then rationing access to treatments, then imposing delays and waits for treatment.
Then we spend the money that could have gone on both consultants and treatments on sending our surplus managers abroad to find out why people are better treated there.
This will never be solved until patients have the right to defined funding for treatments for defined conditions, from the provider of their choice. Including from competitors to the NHS. Maybe then we can get rid of the surplus managers and insane IT schemes and 100% bed occupancy targets and all the rest of the madness that gets in the way of treatment.
Frederick DesLauriers, London, England
Yet another half-hearted attempt at propping up the dismal 'health service' in the UK. Pick and choose from United States' practice as much as you like but, as long as what you propose is caveated by "within budget" then it will turn out to be another 'tweak', another amateur-night attempt to replicate without radical change.
The Unites States' cancer care system works because health care is delivered by healthcare professionals - and not by a bloated, antiquated bureaucracy. The healthcare system in the United States - no matter the current cries of peril - is more adequately funded and less burdened by 'management' than is the NHS.
If you wish to change 'outcomes' in the NHS, change the system.
John Blackley, Austin, TX, USA
So, Senior DoH officials are so dim they need to be taken on a tour of America to witness for themselves what's available. Why cannot they read the available literature, take a course in Oncology for Dummies and listen carefully to their experts? If they are too thick to do this, they are too thick to do their jobs and should be pensioned off and replacements with the proper background in the appropriate sciences appointed.
I hope this bunfest is being funded by other than the pulic purse.
Bill Q, Derby,
around where i am a gp the cancer services are brilliant. However it all depends on the GP; The GP is a screener and should the GP's over refer perhaps because they are not confident of the clinical abilities too amny people are being seen unneceassarily by specialist generating uncesssary worry in patients who do not need to be referred. The introduction of " referral management procedures" should be wlecomed to curp the unnessary and inappropriate referral of patients
chris, dunstable, uk
Despite the money pumped into the NHS it still does not seem able to deliver the goods.If we can only achieve levels of success comparable with impoverished former communist countries our system is flawed. We should move towrds the insurance based systems prevalent in the Eu which allows the individual more real power over his/her right to treatment and loosen the dead grip of the state in controlling our access to lifesaving treatments and concealed rationing. It is tragic that only those wealthy enough to traverl to the US or elswhere can bypass this control.
kay, leeds,
My husband has recently completed 30 sessions of radiotherapy at the Hammersmith Hospital. During our visits there, we noticed that although there were two machines for administering radiotherapy, at no time were they both used. On several occasions, my husband's appointment was bought forward ' because we aren't busy'.
This does not seem to equate to the comments that patients are having to wait for radiotherapy. Could it be that while the equipment is available the administrative services are not up to arranging for its use?
Nina Battleday, London,