Win VIP tickets
“I welcome the clarification, but it still leaves a lot of things unclear,” Raymond Tallis, of Manchester University, said. “The judgment we will have to make is just as difficult as ever.”
The court ruled in favour of Les Burke, 44, who suffers from a degenerative disease, cerebellar ataxia, which means that eventually he will need to be artificially fed and hydrated.
The court ruled that if Mr Burke or anybody in a similar position demanded treatment, he was entitled to it, and that doctors could withdraw it only if the life it imposed on the patient was “intolerable”.
The ruling gives “living wills” — written when a patient is competent — greater authority over the treatment when mental incapacity intervenes. The great majority are made by patients who do not want to be resuscitated at the end of their lives. Demands to continue treatment have previously carried less weight but the court has now given equal value to both demands.
The ruling also raises the “threshold” at which doctors can withdraw or withhold treatment.
Previously, the decision has been based on an assessment of the “quality of life” of the patient; the High Court said yesterday that treatment should be withdrawn only if the patient would judge their life to be “intolerable”. The General Medical Council plans to appeal.
Professor Tallis said: “What do we do if treatment is clearly futile, and not in the best interests of a patient who cannot communicate, and where no clear document outlining his wishes exists? The judgment of what is intolerable is just as difficult.”
Dr Nadim Haboubi, a consultant geriatrician from Abergavenny, said: “How do you define intolerable? It’s like pain, it varies from one person to another. And I don’t think it is appropriate to lay down hard and fast rules. At the end of life, some judgment should be left to doctors. How can patients tell what condition they will be in 30 or 40 years in advance?” Dr Stuart Bruce, a consultant in the Department of Medicine for the Elderly at Conquest Hospital in Hastings, said: “If he (the judge) is saying that patients are entitled to demand treatments that are futile and burdensome, then it will mark a big change.”
In some conditions, such as persistent vegetative state, artificial feeding or hydration can keep patients alive indefinitely. In others, such as dementia or Huntington’s disease, death is inevitable but can be delayed. In yet others, such as stroke, there may be a chance that a patient will recover.
Professor Tallis said: “If the patient has a good prognosis, there is no problem. But if the prognosis is bad, then there is a problem. You have to try and second-guess what they would want.”
The High Court was told that the number of patients who die after the withdrawal of hydration and nutrition was “thousands”, but this is guesswork.
Julia Quenzler, of SOS-NHS Patients in Danger, said that many elderly patients with full mental capacity and the ability to eat and drink normally were sedated so that they were no longer competent; then hydration and sedation were removed on the grounds that the individuals were no longer able to make their own decisions.
In cerebellar ataxia, patients normally retain their faculties until the end, Dr Bruce said. So when the time comes Mr Burke will be able to make clear what he wants.
FOR AND AGAINST THE GMC GUIDELINES
Win a luxury weekend to Newcastle and its neighbour Gateshead, find out more here
Risk, resilience and embracing new technology
Industry sectors news at a glance. Interactive heatmap, video and podcast
Discover the power of collective thinking. Submit a solution and be in with a chance to win a Media Hub Home Entertainment System
The inside track on current trends in the charity, not for profit and social enterprise sectors
Everything the Business Traveller needs to know to make a better trip
Make the most of the summer and enter our fabulous photographic competition, you could win a £5000 holiday
Corsica is an island of beauty and contrast, an ideal holiday destination
Enjoy further reading from Travel to Fashion, Business to Sport, discover more
Shortcuts to help you find sections and articles
The clever way to lease a new car is with Car leasing made simple™
2009
per month on 36-month
Personal Contract Hire (PCH)
2008
42850
Car Insurance
£23,093 - £56,211
The Office for National Statistics
Newport, South Wales
£60,000
The Environment Agency
Bristol
Up to £90K
Boots
Midlands
OTE £85k
Credit Protection Association
Nationwide Opportunities
Completely London
Luxury Condo's in Manhattan with NYC views
The best new homes in Wimbledon?
Nationwide
Fabulous Cruise And Cruise & Stay Offers Including Virgin Atlantic Flights Prices Start From Only £699pp!
Last Minute Cruise And Cruise & Stay Offers. Med From £499pp, Caribbean From £699pp!
5 star quality at a 3 star price.
8 fabulous Canadian cities ...you won’t find cheaper
Contact our advertising team for advertising and sponsorship in Times Online, The Times and The Sunday Times, or place your advertisement.
Times Online Services: Dating | Jobs | Property Search | Used Cars | Holidays | Births, Marriages, Deaths | Subscriptions | E-paper
News International associated websites: Globrix Property Search | Property Finder | Milkround
Copyright 2009 Times Newspapers Ltd.
This service is provided on Times Newspapers' standard Terms and Conditions. Please read our Privacy Policy.To inquire about a licence to reproduce material from Times Online, The Times or The Sunday Times, click here.This website is published by a member of the News International Group. News International Limited, 1 Virginia St, London E98 1XY, is the holding company for the News International group and is registered in England No 81701. VAT number GB 243 8054 69.