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ONE of Britain’s medical colleges is set to change its guidelines on a condition that threatens the lives of newborn babies, after it was highlighted last week by The Sunday Times.
Pregnant women at risk of vasa praevia will now be screened during routine ultrasound scans at 20 weeks. Previously doctors have avoided conducting the test because of the cost involved in caring for expectant mothers found with the condition.
Nick and Sharon Partridge, from Burton, Staffordshire, had a daughter, Lauren, who died of the condition in 2004. Nick Partridge, a management consultant, said: “We are absolutely delighted the Royal College of Obstetricians and Gynaecologists [RCOG] has decided to change the guidelines. They are seen as a gold standard world-wide, so this will have a huge effect.”
According to official figures, vasa praevia kills at least one baby in every 2,500 more than 300 a year. It occurs when blood vessels from the placenta or umbilical cord block the birth canal and rupture as the waters break. Undiagnosed, it is fatal in 95% of cases, but almost every baby survives if it is picked up by ultrasound scanning.
Yinka Oyelese, a leading American specialist from Robert Wood Johnson University hospital, New Jersey, said: “I have never come across another condition where early diagnosis makes such a dramatic difference."
The RCOG said the guidelines would be published by next year.
Daren and Natalie Samat, from Amersham, Buckinghamshire, began campaigning for the change in the guidelines because their son Henry died 13 days after his birth in November 2005. They were told it was too expensive to screen for vasa praevia. Mothers need to be closely monitored, often spending weeks in hospital before elective caesareans.
Daren Samat said: “We were devastated to discover that the problem could have been picked up in a scan. Henry was perfect in every other way, but senior consultants told us that cost issues in the NHS meant they didn’t scan for it.”
The Sunday Times has been contacted by many parents whose children were victims of the condition. Lesley Appleyard, from Snaith, East Yorkshire, said she was told her son Bailey would have died if his caesarean delivery had been delayed by even a minute. “When I came round, they said, ‘You’ve got a little boy’, and I just asked, is he dead?” she said.
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Babies shouldn't have to die financially. I mean, so what if the diagnostic test that checks babies for vasa previa is on the expensive side? It's like, either use it no matter what the financial cost, or risk going to jail on charges of manslaughter!!
Liz Stoner, Renton, Washington, USA
We are absolutely delighted to hear of this U turn in the NHS's policy! Our little boy Zac Davidson was born in August 2004 by emergency section due to a massive haemorrhage resulting from vasa praevia and he would not have survived had he been delivered even a matter of seconds later. He had to be ventilated and transfused on delivery and was critically ill with many of his organs going into failure due to massive blood loss and oxygen deprivation. Only now, 2.5 years on, has he finally been given the all clear. We are very aware of just how lucky we are to have emerged from this experience with a healthy little boy - statistically the outcome should have been very different but we are also frustrated that the condition was not identified, despite classic symtoms of bleeding and contractions. I am certain that the cost of Zac's stay in Special Care and the on going developmental assessments have far outweighed the cost of a scan when I was first admitted with bleeding!
Daniela Davidson, Portsmouth, UK
Thank You to the RCOG! Every woman and baby deserves a chance to be diagnosed. Parents & babies across the country are saying, "Thank You."
Jamie McMillan, Sanford, NC/USA
My beautiful 4th daughter was still-born at 38 wks due to Vasa Previa in August 2001. The affect on our lives has been devastating, especially to learn afterwards that it could have been picked up and only due to NHS funding was the screening so inadequate, despite being high risk & having many scans, nothing was ever checked. My placenta & cord were a big mess and photos were taken for medical use with my permission. Despite my concerns as to a different pregnancy & baby size, no one took me seriously. I awoke at night to go to the toilet, as I sat back on the bed, I thought my waters had broken, only when I put the light on did I realise that from the bathroom & back the floor was covered in bright red blood- little did I realise it was my babies, I thought it was mine, she would have already been dead at that time. In 2001 there were only a handful of unheard VP parents, thanks to Natalie & Darren, they have bought this terrible sacrifice of our children to the attention of all.
Jackie Frith, Coalville, Leicestershire.