This little boy is six years hold and has every hope. I know how heartbreaking it is when you know they won't run or walk anymore and they lose their physical strength. But I promise you there is so much that can already help and give an good quality of life. Our middle son is 23, he has DMD. He has enormous strength of character and he lives a full and rich life. He has a flat, a job, loads of friends. He is completely physically dependent and he needs a ventilator at night, but there is so much that he can do , you just have to make it possible. It is a balancing act. This new drug sounds promising but don't forget the advances in daily care that are already there. I know I have to be realistic but hope and optimism have got this family through a lot. Live life and try not to think about death.

Siobhan Jowett, Thoiry, France

Maybe you should actually read the main article, rather than ranting..

Stephen, Oxford,

What is the drug? How does it act? How effective is it? Why doesn't it work for Daniel? What is its approval status? When might it be on the market?

Why isn't that information in the article? Do you think we're only interested in gossip?

Harvey S. Frey, Santa Monica, CA

Dear Sir,
I have a kids which 5yrs old and his having Ullrich congenital muscular dystrophy and I wander will it help on my Kid's and I would like to put him on the test

Patsy Chan Peng Hong, Selangor, Malaysia

This little boy is six years hold and has every hope. I know how heartbreaking it is when you know they won't run or walk anymore and they lose their physical strength. But I promise you there is so much that can already help and give an good quality of life. Our middle son is 23, he has DMD. He has enormous strength of character and he lives a full and rich life. He has a flat, a job, loads of friends. He is completely physically dependent and he needs a ventilator at night, but there is so much that he can do , you just have to make it possible. It is a balancing act. This new drug sounds promising but don't forget the advances in daily care that are already there. I know I have to be realistic but hope and optimism have got this family through a lot. Live life and try not to think about death.

Siobhan Jowett, France,

Wow Peggy how fortunate you are to see everthing so black and white. We have 2 children with cystic fibrosis. Our oldest was misdiagnosed in the UK we are very lucky that he doesn't have significant lung dammage. We moved to NZ and had our second child that was diagnosed at 6 weeks with cystic fibrosis. We were devastated to find out that both our children had CF.I understand your viewpoint and how fantastic it would be to stamp out these horrific genetic disorders.

Sarah Millwater, Bay-Of-Islands, New Zealand

Because if you're a carrier for duchenne's does not mean that you will have a child with the disease. It's a fifty-fifty chance type thing. Also, even if you're not a carrier with the disease does not ensure you to never have a child with it. Genetic mutations can happen to anyone. Point being: even if people that are carriers make the choice to not have children does not ensure the disease won't continue to spread.

Lynnette, Graceville,

I always have the same reaction to sad stories like this. If you are carrying such a gene - why do you have children? Why ensure it continues and spreads?

PeggyW, Blyth, Northumberland