Sarah-Kate Templeton, Health Editor
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MORE than 50 babies with club feet were aborted in just one area of England in a three-year period, according to new statistics.
Thirty-seven babies with cleft lips or palates and 26 with extra or webbed fingers or toes were also aborted.
The data have raised concerns about abortions being carried out for minor disabilities that could be cured by surgery.
Abortions are allowed up to birth in Britain in cases of serious handicap, but the law does not define what conditions should be considered grave enough to allow a termination late in the pregnancy. That is left to the discretion of doctors.
The Commons science and technology committee is carrying out an inquiry into whether the law should be made more specific.
Some parents, doctors and campaign groups are worried by what they see as a tendency to stretch the definition of serious handicap.
In 2003 Joanna Jepson, a Church of England curate, instigated a legal challenge against West Mercia police for failing to prosecute doctors who carried out an abortion on a baby with a cleft palate at 28 weeks’ gestation. The challenge failed but raised public concerns over terminations for minor disabilities.
However, the latest figures — released by the South West Congenital Anomaly Register — show that dozens of abortions are still carried out after the condition is discovered.
Jepson, now vicar of St Peter’s church in Fulham, west London, said: “These figures raise grave questions about how the law is being implemented for babies diagnosed with a disability. I have strong doubts that the law is being used to protect the unborn.”
Julia Millington, political director of the ProLife Alliance, added: “It is incomprehensible that a baby would be rejected for what amounts to little more than a cosmetic imperfection. Equality for the disabled cannot be achieved until we remove this discriminatory provision in the law.”
The figures record abortions for congenital anomalies in southwest England from Cornwall to Wiltshire between 2002 and 2005. They show that 54 babies with club feet, 16 with extra or webbed fingers and 10 with extra or webbed toes were aborted. The stage at which the abortions were carried out was not recorded, but the abnormalities would have been diagnosed at about 20 weeks’ gestation.
Welsh data show babies were aborted for cleft lips and palates at 27, 29 and 34 weeks between 1998 and 2005.
Tim Overton, consultant in foetal medicine at St Michael’s hospital, Bristol, and a member of the register’s steering committee, said he doubted that any of the abortions would have been carried out solely because of a club foot or an extra digit
— a condition known as polydactyly. He said: “We know polydactyly can be associated with [other] genetic problems that we cannot diagnose in the womb but that can have very serious long-term consequences.
“Cleft palate and cleft lip can also be associated with underlying genetic syndromes that we cannot diagnose in the womb.”
For further details of late abortions in Wales for cleft palate and lip, see slide headed "Outcome by gestational age for all clefts in Wales (1998-2005)" on page 20 of this document
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I am absolutley disgusted with what I have read. As the mother of a nine month old baby who was born with club feet (and whose feet are know corrected as she has been treated using the Ponsetti method) I feel totally ashamed that there are people in this country who choose not to have a child just because their feet are not perfect. My daughter is absolutely georgous and gives us great pleasue. Her club feet have not prevented her from achieving any milestones and will not prevent her from achieving anything that she want in the future.
We knew that she had club feet at my 20 week scan and were offered an amnio to ckeck for other abnomalities - someting which I refused.
I don't know how these people can sleep at night knowing what they have done.
RJ, Manchester,
It's a bit obvious that doctors are putting the costs of corrective surgery before children's lives. Whether that is because hospital managers are putting pressure on them or not remains to come to light. Eventually a brave doctor will come forward with the truth.
Holding back information about corrective surgery, or being negative about it, is tantamount to encouraging a mother to go ahead with an abortion. In these circumstances, no doctor needs to pretend to themselves that somehow they have been impartial, because their soul knows otherwise.
Doctors should not concern themselves with the future cost of any child to the NHS, itâs not their place. If it has become a consideration then they should re-look at their own life and its value to the whole of humanity.
Carol, Midlands, UK
As a father of a beautiful and wonderful disabled daughter (Cerebral palsy) I have found for years the attitude of many people in the UK towards the aborting of babies because they are disabled utterly incomprehensible. No other group would receive such discrimination â it is thankfully illegal to discriminate on the grounds of race, sex etc â but when it comes to the disabled, often the most vulnerable in society, much of society blindly adopts what I can only say are Nazi-like views.
Clive Wright, Lichfield, Staffordshire
My mother was told that my sister would have spina bifida, and ecouraged to abort her. She felt pressurised into making this decision, and was told by the doctors that she was "a foolish girl" for "burdening" herself with a disabled child. She went ahead with the pregnancy nonetheless, and gave birth to a perfectly healthy girl. This may have been an unusual case, but as aborted foetuses aren't generally tested for abnormalities it's impossible to say.
Paul Chegworth, Oxfordshire,
Let's not be afraid to call this what it is--- murder of a defenseless human being.
Connie , New Orleans,
The notion that the right to the title 'human' and therefore the right to life should be defined by a baby's ability to survive independently is utterly misguided. Such desperately selfish thinking is sadly not unique in the history of mankind. The Jewish people could be exterminated because they were classified as sub-human by their exterminators. The Slave Traders could sleep at night even within earshot of the screams of their captives because they were no more than 'animals'. To dispose of unborn babies as unwanted commodities is simply evil.
Peter Sherwood, Ripon, UK
My daughter's baby was diagnosed with a two vessel cord and polydactyly at the 20 week scan in Hong Kong. The word "termination" was mentioned at the time but, after recovering from the shock, she decided to seek a second opinion in the UK. One of the consultants she saw was Tim Overton and his staff at St Michael's Hospital in Bristol. He confirmed the findings in HK and carefully explained that indeed this could be indicative of other problems. After seeking further advice from two genetic specialists and another foetal consultant in London (and by this time having the results of the amnio test), she and her husband decided to go ahead with the pregnancy. Her son was born on the 17th October, perfectly healthy and, yes, with the additional toe on each foot which she is told can be safely and easily removed within his first year. The moral to the story is - seek all the advice you can from as many specialists as it takes before taking such a radical step.
New Granny, HK & Isle of Wight, Yarmouth, Isle of Wight, United Kingdon
My son was born with a club foot . We didn't know he had this abnormality until he arrived, but it was picked up immediately by the doctor and first thing the next morning the consultant was in giving him a correcting programme of physio. This proved not to be successful and ended with an operation at 10 months which worked perfectly.Twenty years on , he is a university student with a bright future and a lovely human being, how would we ever have considered not having him?
Eva, Newbury, UK
If we maintain that it is logical to abort babies with minimal abnormalities like cleft lip and palate where does this leave us in the future. What will we define as 'inconvenient' in the future - some people dont like ginger hair, large noses, short legs.... the list is endless.
oliver, edinburgh, uk
My daughter was born with a club foot and she has undergone major surgery a number of times over the last 8 years, but I am so glad that she is here. I was offered an abortion when I found out about her condition, but decided as it was not life threatening it was a ridiculous idea. What makes a 'perfect human being' anyway? Who are we to decide?
Catherine, chippenham, wiltshire
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