Sarah-Kate Templeton, Health Editor
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A WOMAN suffering from breast cancer has run out of time to benefit from a potentially life-extending drug which the National Health Service (NHS) denied her, even though she was prepared to pay for it.
Colette Mills has been told by doctors that in the four months since she asked for the drug the disease has taken such a hold in her body that the cancer will no longer respond to the treatment.
She is the victim of a ruling which states that any patient who wants to pay for additional drugs not prescribed by the NHS should lose their entitlement to their basic NHS cancer care and pay for all their treatment. She was prepared to pay for the drug but not her whole treatment.
Mills, a 58-year-old former nurse, said: “I am just absolutely gutted. I just cannot believe people make these decisions about other people’s lives.
“It wasn’t going to cost them. I was going to pay for it. How can they say this policy is far more important than somebody’s life?
“The NHS has taken this opportunity away from me and, if they are doing it to me, they are doing it to a lot of other women as well.”
The government claims that to allow some patients to pay for additional drugs on top of their NHS treatment creates a two-tier system between those who can and cannot afford them.
Asked about her future prospects, Mills said: “They are not hopeful of halting it. They will give you no promises. I didn’t ask and he [the doctor] didn’t say. It is not something I want to know just yet.”
Mills, a mother of two, launched a legal action to try to force the NHS to allow her to pay for the drug Avastin which she wanted to take alongside another medicine, Taxol, which is prescribed by the health service.
But during her four-month battle with the NHS, the breast cancer has spread to other parts of her body and doctors have told Mills it is too late for her to benefit from the combination of Avastin and Taxol.
An American trial has shown that taking the drugs in combination doubles the chance of preventing the disease from spreading compared to taking Taxol on its own. Taking Avastin in addition to Taxol is also likely to keep the disease under control for almost twice as long. Leading oncologists say Avastin offers a small but significant advantage in treating breast cancer.
Mills will now be prescribed an alternative medicine but does not know how successful this will be in stopping the cancer.
Several other cancer patients are also taking legal action to win the right to pay for medicines that are not available on the NHS. The patients’ lawyer, Melissa Worth, of the law firm Halliwells, said: “Colette has been told by her medical team that she may have missed her chance. If she had been given the opportunity to take the Avastin when she first contacted her medical team about it, then she would have had three months’ treatment by now. Months down the line, the policy will need to change but for those patients currently fighting their NHS trusts, it might be too late.”
Becoming an entirely private patient would have cost Mills, from near Stokesley, North Yorkshire, about £10,000 a month instead of about £4,000 solely to pay for the Avastin and its administration. Although she could have tried to raise the funds such as finding a loan, she believes it is a fundamental principle that the NHS should continue to fund her basic care for which she has paid through her taxes.
The Department of Health, however, said top-up payments would “undermine” the “fundamental principle of the NHS, now supported by all the main political parties, that treatment should be free at the point of need”.
Mills’s case has provoked a national debate about whether NHS patients should be allowed to pay for top-up treatments.
NHS chief executives, the Patients Association, Doctors for Reform and Saga, the organisation for the over-fifties, have all backed Mills and other patients in her situation since The Sunday Times highlighted their plight last year.
A group of Conservative MPs, including former shadow health minister John Baron, are campaigning for co-payments to be allowed.
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It is disgusting to read in the news that the government has spent 350 million pounds on maternity care for foreign mothers and another 50 million pounds on translators for these mothers but can't fund treatment to a british citizen who has paid her taxes for NHS healthcare. I agree with Judy from Liverpool, people coming to this country should pay for their healthcare for the first 5 years of residency, this would release a lot of funds.
Best wishes to Colette Mills, thoughts are with you.
Jayne devereux, Leicester, England
There still seem to be many who think there is in some way a British NHS . There is not and there hasn't been for 10 years .
There are now four NHS's for the four "home " countries . Scotland , Wales and NI run their own . England does not have her own government loyal to England . We are ruled by the British government which generally displays dislike amounting to loathing of England . Thus ,the English NHS is run by the British government which also operates the Barnett Rules against England .
Health funding for England on a percapita perannum basis is way behind the other three which explains why this sort of thing happens almost entirely in England . If Mrs Mills were Scottish in Scotland there would be no problem .
Once this basic fact is grasped it all falls into place .
J Blitz, London , England ,
The British Govt, discriminates against ENGLAND! YES the English! are 2nd class citizens within there country which is part of the UK without representation! this is what happens when you have assemblys & parliaments for the rest of the UK
England has nothing, this is what you get. Being ruled by a British Govt......when are the People of England going to wake up! Speak Up! for there rights........Because
this leaves INEQUALITY & INJUSTICE TO ENGLAND!
L.C.Pickring, Bristol, England
I am an American living in the UK. I think Jerome and others are completely wrong to slate the NHS: it is generally excellent. However, there are cases like these where the government gets it entirely wrong.
The government wants to avoid a two-tiered health system, but this is precisely what we have, not least as some have private health insurance and most of us do not. This argument does not work.
I can hardly understand why it is that the government would rather its citizens die in situations where they could receive treatment (albeit at private expense) all to satisfy the ideological goal of avoiding a two-tiered healthcare system. Since it is clear this already exists, can we just forget about this now and get citizens the treatment that they need....?
Thom, Newcastle upon Tyne,
This is entirely tragic and completely wrong and if you want funding in future charge every immigrant to the country for their healthcare for the first five years of the residence. I wish this lady good luck and all my very best thoughts go with her and God forgive this pedantic, intransigent Government, they have a lot of blood on their hands....worldwide.
Judy , Liverpool, england
In the field of NHS Dentistry treatment is not free at the point of need also it is possible, under the NHS, to mix both NHS and Private treatment. This is in direct conflict with the M O Health statement that,it undermines the basic principle of the NHS. if NHS Dentistry can do it
Chris Coleman, Worcester, Worcestershire
Any Americans out there? THIS is why you should oppose socialized medicine in the USA.
Best wishes and prayers for Ms. Mills; shame on the politicians responsible for this NHS policy.
Jerome, Boston, Mass., USA
I think it is atrocious that someone's life or death is restricted by beaurocracy in it's path. The NHS are already crippled financially and it should allow a person, who is already facing an unimaginable horror, to part pay for a requested treatment even if that person is not in an affluent enough position to pay for the treatment 'allowed' by the Government via the NHS. This is someone's life we are considering, it could be the difference between 12 months on Earth or another 15-20 years possibly more.
Alison Brown, Chorley, Lancs
The government's view is entirely consistent with the Stalinist approach of Gordon Brown, who used to preach that people should use the State to the maximum possible. He and his sorry excuse for a government want us all totally dependent on them! How can Brown, his heart bleeding over Africa, allow a British woman to die like this? So much for his conscience and his manse upbringing!
JIM Smith, BURPHAM, SURREY
It is sad and absolutely shameful on this ridiculous government policy, which should be scrapped without delay. Life appears to have little value in today industrialised world
Arif, Ilford, Essex
This is madness. Why should the government be allowed to discrimnate against people who try and help themselves.
Duncan, Ashford,
Seems like morals and values of the country have gone bonkers...
Shalini, Middlesex,
Let's be consistent and refuse NHS treatment to anyone who took aspirin before seeing the doctor. It is unfair that people who can afford aspirin should have less pain than those who can't.
The huge savings can be used to pay for more administrators and management consultants to prove we have the best health service in the world.
Mary Watkinson, Tooting,