Claire Newell and Steven Swinford
We've made some changes
to The Sunday Times
WHEN David Ramsay, a former senior consultant at Guy’s hospital in London, was diagnosed with dementia in 1998, his wife fought for three years to have him taken into full-time care.
But just months after winning her battle, David’s neck twisted by 90 degrees, leaving his chin permanently fixed to his chest and forcing him to spend the rest of his life staring at the ground.
His condition, a rare neurological disorder, was a side-effect of a powerful antipsychotic drug prescribed to control the symptoms of Alzheimer’s. According to a parliamentary report, to be published later this month, his case is far from isolated.
The report, by the all party parliamentary group on dementia, has found that elderly people are routinely being prescribed antipsychotic drugs to make the lives of carers easier, despite evidence that they are of little benefit to the patient and have potentially lethal side effects.
Jeremy Wright MP, the Conservative chairman of the group, said: “It is clear that there are many occasions when these drugs are being used as a method of chemical restraint. This is undoubtedly systematic abuse.”
The Alzheimer’s Society estimates that antipsychotic drugs are being prescribed to 105,000 elderly people with dementia in Britain, and that in two-thirds of cases the drugs are unnecessary. Studies show they can increase the risk of strokes and have other side effects, such as the disorder suffered by Ramsay.
According to his family, Ramsay was given Olanzapine in October 2001 without their knowledge. When he refused to take the drug his carers allegedly ground the pills into powder to put in his yoghurt. He developed tardive dystonia, which twisted his neck, in April 2002.
Ramsay was taken off the drugs and moved to a specialist nursing home, where he died in September 2006, aged 63. At his funeral in St Mary’s Church in Chislehurst, Kent, mourners were presented with two images of David, one as a healthy 50-year-old, looking proudly ahead, the other with his head twisted at a 90-degree angle.
Lynne, his wife, said: “I wanted everyone to appreciate how people with dementia are treated and the massive impact these drugs had on David’s life.”
The all party report will recommend improved training for carers, better consultation for family and friends and a three-monthly review of medication for care home residents.
A spokesman for the Oxleas Foundation NHS Trust, which prescribed Ramsay the antipsychotic drug, said Ramsay knowingly agreed to take Olanzapine. The trust claims the drug improved his mental health, and added that the medication had been approved by a clinical director from another NHS trust.
Eli-Lilly, the manufacturer of Olanzapine, said the side effect suffered by Ramsay was “very rare” and the drug was neither licensed nor promoted in the UK to treat patients with dementia.
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I agree more with you, Bill Q, Derby.
I am in the midst of a similar situation.
A Psychogeriatrician knew best, and prescribed a very powerful drug without any consultation with family - my dementia-suffering relative is now dead. The disdain with which they treat the vulnerable people.
James Doll, Berkshire, England
This has got to stop. It's time for countries to call into play thier respective federal attorneys. In the U.S. - time for full investigations by the Dept of Justice - Office of Attorney General.
The elderly are our most vulnerable. If we cannot protect them, we cannot call ourselves a civil society.
Full investigations, indictments, fair trials - and then, jail time for the makers and promoters of these lethal agents.
Duane Sherry, Dallas, Texas
http://discoverandrecover.wordpress.com
Duane Sherry, Dallas, Texas, ISA
Among all the medical professions I have encountered, or heard tell of among family and friends, psychiatrists take the most liberties with the rules, are the most experimental with patient prescriptions, and, thereby, cause the most directly attributable harm.
Why is the rest of the medical profession so reluctant to bring psychiatrists under control? The laws already exist, and need enforcing. Perhaps even the medical establishment has been cowed into submission by psychiatric double-talk and know-it-all arrogance.
TimeWoundsAllHeels, Los Angeles, , CA USA
Presumably the Oxleas Foundation NHS Trust has evidence that Mr Ramsay consented to the treatment, and that the consent was informed. This should be present in his notes, preferably with his signature.
If the Trust did not obtain a proper consent, and did not consult with his family, they are guilty of assault and battery, and the doctor who prescribed, and all those who helped administer the drug, are guilty of gross professional misconduct.
Perhaps if the Times is interested in doing more than reporting this abuse, they might be minded to put a journalist on tracking down the answer to these issues.
Bill Q, Derby,
Elderly in the United States are also being "treated" with the same disregard.
The pharmaceuticals are such expert marketers that the drugs are being used for various unintended "disorders" and now we are seeing the horrendous side effects, thousands of personal lawsuits and States suing.
Jerome, Tampa Bay, Florida, USA
Doctors are in the habit of prescribing medicines said to cover a number of ailments. My mother died, following a fall down stairs after being prescribed Olanzapine for nausea.
In hospital doctors and nursing staff are full knowledgeable about drugs available to keep otherwise noisy patients quiet. When mother was hospitalised in a local hospityal she was ver frightened - scared - and verbose - noisy, especially when assistance to the toilet was not forhcomimng. Mum was was prescribed Haliperadol - that kept her quiet. She left hospital,quietly, and returned to her care home were quietness continued with the help of the chemical cosh. Mother died quietly.
No-one will take responsibility or be accountable for this sort of drug prescription, but trying to illicit the truth for the reasons for such prescribing from doctors and nurses is an almost impossible task, but they know that the only reason for such prescription is not to 'treat' the patient per se - is it?
Rodney Barker, Gainsborough, England UK
There needs to lot more public funding for the care of people suffering from Alzheimer disease. It should be also targeted to help the carers instead of leaving them to struggle on their own.
Mahendra Kothari, Leyland, Lancashire