Roseanna Cunningham
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There’s an old saying that hard cases make bad law. When it comes to end-of-life decisions, this is never more true. No-one could fail to be moved by some of the very sad stories told about those who beg to be helped to die. Nevertheless, we must question the logic and we must consider the wider impact on society of allowing a change in the law to take place. It is a fundamental shift in what we understand the National Health Service to be about.
This debate is taking place at a very particular moment in our population history. We are frequently presented with demographic research which talks in terms of the “problem” of the increasing number of elderly people in society. This is frequently described as a “burden” on the health service. Caring for them is costly. Challenge the language and it is of course hurriedly amended, but there is a clear implication in the approach and it is that implication which should worry us profoundly. It is only a short jump to applying that same language to individuals. A costly burden and a problem to be solved. It is not only the elderly who would be included in this category because as health professionals and others are quick to point out, the most costly period of a person’s life is the last year or two before death, at whatever age that death happens.
Well, here’s a truth there’s no escaping. We are all going to die. We may be a bit more expensive to maintain in those last months, but that is just as much a part of our healthcare as our earlier years. What we need to do, therefore, is concentrate on doing the things which will make the last months we have as much part of our living as everything that has gone before.
Are there some conditions for which palliative care is still difficult to deliver? I’m not a medical expert, but if there are then shouldn’t we be seeking ways to research and improve such care until we find solutions? Any bets on the likelihood of that happening while there is another infinitely less expensive option?
And what price further research into the causes, cures and alleviation of the many illnesses of old age, already something of a Cinderella area? The Netherlands is often pointed to as a model for the introduction of assisted suicide as if somehow everything was rosy in the Dutch garden. That is simply not true. Research a few years ago concluded that guidelines there were consistently ignored and almost unenforceable. Half of Dutch doctors felt free to actually suggest euthanasia to their patients and an astonishing 25% revealed anonymously that they had terminated patients’ lives without an overt request.
As an example. the same study refers to the case of a Dutch nun “helpfully” euthanised by her doctor who decided that her religious scruples prevented her making what he felt would be the most sensible and entirely justified decision. There are many other such cases that point to flaws in the Dutch system that can’t be ignored. An examination of the reality in Oregon, the only US state to adopt this legal change, reveals a similar story of confusion and dubious decisions.
Dignity in dying is important. That is why we already accept that sometimes it is right to stand back and allow nature to take its course. There can be few families who have not, at some stage, had to respond to a hospital request for guidance on whether “Do Not Resuscitate” should be entered into a patient’s notes. The discontinuation of painful and pointless medical intervention that will only be effective for short time is, however, not the same thing as actively intervening to help nature along. Omission and commission are not the same in this context and to suggest they are is to be deliberately and dangerously misleading.
But what about the doctors in this country who have already taken the decision to help some patients die? We know that it happens and there is a case in the news right now involving a doctor charged with prescribing sleeping pills to a patient who said she wanted to end her life. The fact that it might already happen, however, does not provide an argument for legalising euthanasia. Once you do that, the exceptional becomes routine.
Growing numbers of health professionals are invoking the conscience opt-out provided in the abortion legislation and there is already a challenge to that in the House of Commons. Increasingly, “'conscience'” is being derided and sidelined and those who do want to rely on it are having their views dismissed. How much more sharp would that become if we introduce assisted suicide?
We as patients, the medical profession and society as a whole all stand to lose if this becomes the norm. Instead, I would prefer to see us demand better services for the elderly and the dying, services which recognise the needs of the whole individual — medical, physical, spiritual. Let’s put our money where our mouths are and alleviate the fears and concerns of Margo MacDonald and all those who may be worried about the future. That’s a far better way for society to go.
Roseanna Cunningham is the nationalist MSP for Perth and a former advocate.
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My partner died of Motor Neurone Disease (MND) - a cruel, humiliating and hopeless disease. I can assure anyone who reads this that he did not feel a financial burden, and indeed, right to the end, was my emotional support. He wanted to die but the Law - without compassion - denied him this right.
N Wood, Woking,
Firstly we should be clear whether we are talking about ending elderly peoples lifes or assisting those who are terminally ill.
It is not about the former. Anybody who has been affected by the latter situation, and is not subjected to any religious directives, recognises the need.
P. M. Smith, Shepperton, England
Yes there are conditions for which palliative care is currently ineffective,and the situation is as William Affleck states. Self starvation may be the only option at present ,as it was for my late, non-elderly, wife. Unlike Toby of Bedford, she knew that the word euthanasia means 'a good death'.
Oliver Coles, Penrith, Cumbria
The author confuses care of the elderly with care of the dying, who may be of any age. The Dutch and Oregon examples of options for those dying of incurable and painful diseases may not be perfect, but they are light-years ahead of most of the rest of the world including this country.
John Parfitt, Bristol, UK
A confusion of 2 completely separate issues. Caring for an increasingly ageing population is one of Society's biggest challenges .It has nothing to do with assisting death in those dying with intractable suffering : as a choice and extension of the best palliative care when all else fails.
Simon Kenwright, Ashford Kent, UK
Cunninghm's article is typically archaic and uninformed. She cannot imagine the reality of knowledge of a patient with the personality and mentality capable of facing the inescapable.
Who does she think she is "saving"? Does she personally want a social worker to call with 'spiritual comfort'?
Vivien Sleight, Hemel Hempstead, England
Assisted dying is not (and never should be) the solution to the problem of an ageing population.
But for terminally ill British citizens who can travel to Switzerland it can provide a solution. People who are dying, mentally competent and suffering unbearably should have that choice here.
Lesley Close, Amersham,
What service will we provide to those whose quality of life has gone, who are, and know they are, terminally ill with nothing to look forward to but ever increasing pain beyond medical relief. At the moment all they are allowed to do to gain relief is starve themselves to death. We can do better.
William Affleck, Nailsworth, UK
It's nonsense to suggest that we just need to wait for palliative care to improve. Good palliative care can help many people (and we certainly need more of it), but it can't help everyone. We desperately need to provide people with the dignity of choice at the end of their lives.
Edward Turner, London, UK
The article comments on references to the " 'problem' of the increasing number of elderly people in society".
It's a small step to link 'cost of care' to 'value of life'. And we're not far off it.
The Nazi's made the connection, and found a 'solution'.
Euthanasia is the same philosophy.
Toby, Bedford, UK
I, for one, shall be retiring to the Netherlands.
Katherine O'Brien, Maidenhead,