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Grudgingly, she sat in her wheelchair, yearning for the swelling in her legs to go down. The doctors advised her that it might take weeks, weeks she knew she did not have. To maintain her focus, she wrote down her goal on the face of her mobile phone and on the screen-saver of her computer – “Seven Golds”, as if looking at the words would hasten her recovery. One day she ignored the doctors, her family and just about everybody else and climbed out of the chair. “Training camp ahead of the [International Paralympic Committee] swimming world championships in Durban was just over a week away,” Jessica Long recalled with a smile. “The swelling was still there, but I had one thing on my mind: to get into my legs and start walking fast.”
The 15-year-old bilateral below-knee amputee from Baltimore, Maryland, won the seven gold medals she had visualised, along with two more – an unprecedented nine-gold haul that featured solo world-record times in the 100m freestyle, 400m freestyle, 100m butterfly and 200m individual medley. Her efforts were recognised last month when, ahead of Michael Phelps, who dominated this year’s world swimming championships in Melbourne with seven golds, she was presented with the Sullivan Award as the outstanding amateur athlete in the US, the first Paralympian to be thus honoured. Long is sure to be one of the stars of the Paralympic World Cup, which begins tomorrow in Manchester.
“I just thought I’d get to meet Michael, that’s all I was hoping for,” she said on a family holiday in the Shenandoah Valley in Virginia, where deer grazed outside their rented house. “My mind kept going back to the days last August when I was recovering from surgery on my knees and I was sat in a wheelchair. It killed me, but it also made me appreciate . . . I mean, I know that I’m missing half my legs, but you begin to appreciate the good part a lot more.”
Her father, Steve, chuckled when reminded of her indomitable will to be ready for South Africa. “Jess has had seven or eight corrective surgeries on each leg because the bone is very sharp. Once it even punctured her skin and she had to be in a wheelchair for two or three weeks, but other than that, she has rarely used a wheelchair. We don’t even own one,” he said. “When she first had the amputations [at 18 months] we had a small wheelchair for her, but even then she was determined to get in and out of it herself and she didn’t much like when we pushed it. When her legs were amputated they fitted her right there in the recovery room with little prosthetic legs and she learnt to walk with those. They gave us a telephone number for a physical therapist, but she was up and walking before we made the call. After we got her a stroller which she could hold on to, using it like a walker, she learnt to walk on her own. She’s always had that determination.
“Whenever she tried to do something and couldn’t, she had a tendency to get really upset. I always remember this time she was in a wheelchair at Ocean City and it hit a crack in the boardwalk and she fell out. Jess was maybe six or seven years old and we knew she didn’t want us to help her. She wasn’t hurt, but everybody on the boardwalk was looking at this little girl who had fallen out of her wheelchair and they were looking at her mother [Beth] and I, who were leaving her to climb back in by herself. We must have looked like awful parents, but we knew she would have got mad at us. She would be mad at herself for needing the help and you could see this determination from a very young age.”
When Steve Long first set eyes on his little girl she was lying in a cot with two other babies in an orphanage in Irkutsk, one of the largest cities in Siberia. The depressing building seemed to be in constant semi-darkness. The plumbing did not work, so there were hosepipes in the toilets and pots tied to each crib, which the babies sat on constantly because they had no nappies and the carers were too few to see to all of their needs. Some of the windows were broken and boarded-up, yet the beauty with which the Baltimore designer was confronted proved overwhelming. Long and his wife had two children but were told they would be unable to have more, so they had decided on adoption. At a meeting for parents who had adopted children from South America, somebody mentioned to Beth that they had heard of a baby in Russia who needed a home because she had some difficulties with her legs. Her fibulas, ankles, heels and most of the bones in her feet, which protruded from the back of her legs, had never formed and she was desperately in need of surgery, yet it was her “short, blonde hair and pretty face” that shone through when Long first held her in his arms. He also brought back Joshua, who was born with a cleft lip and palate, to their home and the two additions were assimilated into their family life.
A bundle of energy, Jessica gravitated towards sport, which her parents believed would provide the perfect outlet for her exuberance. “I was four when I took up gymnastics, but the jumps and flips became painful to do on prosthetic legs, so I would take them off, but the [instructors] thought this would be too hard on my knees,” she said. “I loved gymnastics and I still like trampolining and I’ve tried other sports like ice skating and rollerblading. I play tennis, golf and basketball too, I ride a bike and I’ve skied for three years. My legs were more ‘pop on, pop off’ then, so with the skis and heavy shoes they would often fall off. The first time I went for lessons I sat down on the lift and before I had time to do anything my legs fell out and stayed at the bottom of the slope while I kept going. I’ve got better at the lift thing because my legs don’t keep falling off any longer.”
At times she would become self-conscious when people stared at her artificial limbs, but cheerleading helped her self-esteem and she wears short skirts and shorts now, like any other teenage girl. “In the summer especially my legs sweat and slip out and it’s not very comfortable, so I like to take my legs off and roam free,” she explained. “My parents get concerned that I could do damage to my knees, and I’ve cut big chunks out of them from walking on sticks in the ground or jagged pieces of rock, but it doesn’t stop me. It’s like being able to take off a pair of shoes and relax. It hurts sometimes, but that doesn’t stop me. I’ve even taken part in a rock-climbing competition in Florida. I feel I can do what I want to do and I’ve felt this way since I was little.”
Jessica was 10 when she first made a splash in her grandparents’ swimming pool but was quickly taking it seriously when she began to compete against able-bodied swimmers. “I am just in awe of Jessica,” her coach, Stephanie Weisenborn, said at the time. “You don’t know she’s a double amputee until she gets out of the pool.”
Because of the reduced strength in her legs, most of her propulsion has to be generated by her arms and upper body. Every time she turns and pushes off with her knees, she loses ground. But she was adept enough at freestyle to win three golds at the Paralympic Games in Athens in 2004 before adding the breaststroke and butterfly to her repertoire to win five at the US Paralympics Open swimming championships 12 months later. Although she did not turn 15 until February, she has set 14 individual world records.
“I want to break a couple more [records] in Manchester, where I’ll be competing in the 100m fly and the 100m free. I’m going to do it no matter what,” she predicted. “I watched some tapes a couple of weeks ago which my grandma took of me when I was younger before I had the [amputation] surgery, so I was able to see what I looked like and how I walked. I was cute, but, if you looked closely, you could see I was determined. When I got my new legs after the surgery you could see me walking around like I wanted to do it by myself. I didn’t want any help. I’ve always been determined and maybe my story can be an inspiration to others, for I feel blessed. I don’t know whatI might go on to do in my life butI know I’ll always give it my best.”
Her favourite T-shirt bears the inscription: “I’m a girl, I’m an athlete, swimming is my sport, prepare to be humiliated.” It is tongue in cheek, but it contains much truth.
Long joins the greats
The James E Sullivan Award is presented annually by the Amateur Athletic Union to the best American athlete in the traditionally amateur sports. The fi rst winner, in 1930, was Bobby Jones, the golfi ng legend who won the US Open and The Open that year. It has since been won by many of the greats of American sport, such as the athletes Carl Lewis, Michael Johnson, right, Ed Moses and Jackie Joyner-Kersee, the swimmers Mark Spitz and Michael Phelps, the diver Greg Louganis and speed skater Eric Heiden, all of whom won multiple Olympic gold medals.
While Jessica Long is the first Paralympic athlete to win the award, which she received last month after prevailing over a shortlist that included Phelps, the ice skater Sasha Cohen and college American football star Brady Quinn, she is not the fi rst disabled star to do so. Jim Abbott, the winner in 1987, pitched baseball in the major league despite having no right hand
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